Comprehensive Health Education | Rare Bleeding Disorders

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Bleeding Disorder News # 72: Green Bay resident; Happy Tears; Nonsense Mutations

This weeks key stories:

 
Emicizumab brings hope to Haemophilia A patients, accessibility remains a challenge
ET HealthWorld
Roche Pharma India: According to experts, Emicizumab prophylaxis is considered to be a far superior and effective way of managing Haemophilia A in ...

Furthering knowledge of menstruation, bleeding disorders - OHSU News
OHSU News
Furthering knowledge of menstruation, bleeding disorders OHSU scientist Bethany Samuelson Bannow, M.D., works to normalize discussions around ...

Building Awareness About Von Willebrand Disease - InventUM - University of Miami
InventUM - University of Miami
Dr. Fernando Corrales-Medina created an online bleeding assessment to raise awareness about VWD and provide educational resources.

Sharing about my bleeding disorders led to an unexpected connection
Hemophilia News Today
Usually, I wouldn't discuss my bleeding disorders — hemophilia B and von Willebrand disease — with strangers, but a chance encounter led to a ...

Mum never got over injecting son with infected blood - BBC
BBC
Kate McDougall gave her son injections to treat his haemophilia which unknowingly led to his HIV infection.

Treatment Options for Hemophilia A and B - Pharmacy Times
Pharmacy Times
With gene therapy, anti-tissue factor pathway inhibitors, and RNA interference therapy targeting antithrombin, there are many new options that ...

How a Minnesota 1st grader is making hemophilia less scary for children - CBS News
CBS News
Emmett Cordes is one of hundreds of Minnesotans living with hemophilia A, a rare bleeding disorder that doesn't let blood clot properly. "The biggest ...

HCB-101 shows promise for diseases due to nonsense mutations - Hemophilia News Today
Hemophilia News Today
HCB-101, hC Bioscience's lead candidate to overwrite certain mutations that lead to hemophilia A, can reach the liver cells of mice, ...

Long-Term Data Demonstrate Emicizumab Safety, Efficacy in Hemophilia A
American Journal of Managed Care
Historically, people with hemophilia A have been treated with prophylactic factor replacement therapy, explained the study authors. The therapy was ...
A Multi-Center Observational Study in Males with Hemophilia - Clinical Research Studies | UPenn Studies
The Gene Therapy Clinical Trial Experience—What to Know | HemAware - HemAware
[Research] Help test an online self-help program for individuals with chronic health ... - Reddit
Full Coverage

Cyclophosphamide therapy may be better for some AHA patients - Hemophilia News Today
Hemophilia News Today
Cyclophosphamide therapy may be better as an add-on to steroids for patients with acquired hemophilia A with a poorer prognosis, data show.
Successful treatment with low-dose rituximab and cyclosporine in acquired hemophilia A - Saudi Research Bank (SRB)
Full Coverage

Activity wristbands may help men with severe hemophilia: Study
Hemophilia News Today
Men with severe hemophilia wearing activity wristbands to self-manage their physical activity saw improvements in physical health in a study.

San Bernardino 5-year-old living active life thanks to innovative hemophilia treatment | News
News - Loma Linda University
Kevin had hemophilia, a blood disorder in which the person's coagulation system lacks the ability to produce blood clotting factors that are critical ...

A Bible presentation ceremony for graduates leads to happy tears - Hemophilia News Today
Hemophilia News Today
Joe's goal is to help his sons and others in the community use their voices to help improve the quality of life for those with bleeding disorder
 
Warning over 'silent killer' infection that has 'vague' symptoms as people 'still being diagnosed'
Yahoo News UK
... bleeding disorder preventing their blood from clotting properly. ... The ongoing inquiry estimates that 1,250 people with bleeding disorders developed 

Study Finds No Treatment-Related Adverse Events in Boys Treated With Purified FIX Concentrate
HMP Global Learning Network
... 6 years and younger with hemophilia B, according to a study published in the Journal of Blood Medicine. Hemophilia B News.
 
Will Sanofi's Altuviiio transform Hemophilia treatment? < Pharma < Article - KBR
Korea BioMed
Sanofi's once-weekly hemophilia A treatment Altuviiio (efanesoctocog alfa) has been designated an orphan drug in Korea, accelerating its ...
 
Green Bay resident to become first Wisconsinite to receive gene therapy treatment for hemophilia A
WBAY
Hemophilia A is a ...
Partners Module Addresses Psychosocial Considerations in Children with Hemophilia - Bleeding.org
Hemophilia: Ask Health Professionals - MSN - MSN
AACR Annual Meeting 2017 - Hemophilia B - The Pharma Letter - The Pharma Letter

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