This week's key stories:

 
Watching Fourth of July fireworks from the hospital gave us strength
Hemophilia News Today
... bleeding disorders community. They fill me with gratitude. Each event I attend, such as conferences held by the National Bleeding Disorders ...

CSL Behring treats two patients with gene therapy for haemophilia B - Clinical Trials Arena
Clinical Trials Arena
... haemophilia B, an inherited bleeding disorder. The patients were treated at haemophilia treatment centres in France. Go deeper with GlobalData.

NICE recommends CSL Behring's haemophilia B gene therapy Hemgenix - PMLiVE
PMLiVE
Affecting more than 2,000 people in the UK, haemophilia B is a genetic bleeding disorder resulting from missing or insufficient levels of clotting FIX ...

We can prioritize our health by learning to say no
Hemophilia News Today
For instance, I'm now on my condo board because I couldn't say no when asked. Living with bleeding disorders like von Willebrand disease and ...

Hemophilia A, B gene therapies now at Loma Linda University Health
Hemophilia News Today
In hemophilia certain blood clotting factors needed for blood to clot are deficient. In most cases, the disease is caused by mutations in genes that ...

Envisioning my daughter's life as a hemophilia carrier
Hemophilia News Today
Columnist Alliah Czarielle writes that she worries about her daughter, a hemophilia carrier, and whether she'll develop the disease.
What if we knew then what we know now? - Canadian Hemophilia Society - - Canadian Hemophilia Society -
Choosing Healthcare Coverage for Bleeding Disorders | NBDF - National Hemophilia Foundation
Hemophilia: When blood doesn't clot normally - HNL - HNL
Full Coverage

Novo Nordisk buys hemophilia A program from 2seventy Bio
Hemophilia News Today
Novo Nordisk acquired a hemophilia A program and rights to gene-editing technology from 2Seventy Bio, completing a partnership spinoff.
2seventy sells hemophilia program to partner Novo Nordisk - Pharma Manufacturing - Pharma Manufacturing
Full Coverage

A conversation with Iván Girón, superstar dad and parent advocate
Hemophilia News Today
... bleeding disorders community than Iván Girón. At Genentech's Rare Blood Disease Summit in San Francisco last year, I was immediately drawn to Iván ...

Hemophilia bleeding didn't stop my husband from parenting, working
Hemophilia News Today
Columnist Alliah Czarielle's husband, Jared, is the embodiment of resilience and adaptability when hemophilia bleeding happens.
Managing fear while raising a child with hemophilia - Hemophilia News Today
In a phone call from my son, I find renewed hope - Hemophilia News Today
EPH87 Real-World Evidence Study on Hemophilia B Treatment with Factor IX and ... - Value in Health
Full Coverage

AAV5 Gene Therapy for Severe Hemophilia A Successfully Enables FVIII Production
American Journal of Managed Care
The participants in the study had severe hemophilia A, defined as having FVIII activity levels below 1 IU/dL, and had no history of FVIII inhibitors ...
EE470 The Impact of a Cost Savings Cap on the Cost Effectiveness of Valoctocogene ... - Value in Health
Full Coverage

Study: Mim8 Shows Reductions in Treated Bleeds for Patients With Hemophilia A
Pharmacy Times
Mim8 had a safe and well-tolerated profile, with no deaths or thrombotic events reported for patients with hemophilia A.
Perioperative Management of Hemophilia Patients | Current Anesthesiology Reports - SpringerLink
Full Coverage
 
Patients surveyed say Florio Haemo smartphone app is reliable, easy to use
Hemophilia News Today
“Our survey results suggest that the Florio Haemo hemophilia monitoring app is easy to use and appropriate for long-term use by people with hemophilia ...
 
New Hemophilia Treatments and the role of the lab
12th Hemostasis Seminar, Hemophilia, Von Willebrand Disease & Other Inherited Bleeding Disorders
 
Patients with Parkinson’s and hemophilia tour Bayer’s Berkeley manufacturing hub
Visits highlight work to treat rare diseases and connect patients to the people who produce their treatments.

Check out our Library of resources for women with bleeding disorders!