Bleeding Disorder News # 77: Seeing the Phillies; Passing the Baton; Food for Thought
This week's key stories:
RCSI research identifies new method to fight common blood disorder
https://www.siliconrepublic.com/innovation/rcsi-research-identifies-method-to-fight-common-blood-disorder
Britain slammed in inquiry for infecting thousands with tainted blood and covering up the scandal
https://www.msn.com/en-us/health/other/britain-slammed-in-inquiry-for-infecting-thousands-with-tainted-blood-and-covering-up-the-scandal/ar-BB1mJtRH?item=enable_random%3Afalse&ocid=ob-fb-frfr-839
NICE reverses reimbursement recommendation for Hemgenix
https://hemophilianewstoday.com/news/about-face-hemophilia-b-therapy-hemgenix-covered-nhs/
Understanding how my role as an advocate has changed over time
https://hemophilianewstoday.com/columns/understanding-how-my-role-advocate-changed-over-time/
Sanofi’s ALTUVIIIO shows promise in paediatric haemophilia A treatment trial
https://www.clinicaltrialsarena.com/news/sanofi-altuviiio-paediatric-haemophilia/
Welcoming a new era of innovative treatment for haemophilia patients
https://www.england.nhs.uk/blog/welcoming-a-new-era-of-innovative-treatment-for-haemophilia-patients/
Haemophilia: Causes and advancements in treatment that you should know
https://www.msn.com/en-in/health/other/haemophilia-causes-and-advancements-in-treatment-that-you-should-know/ar-BB1pUBUh
Hospitals run out injections for haemophilia treatment
https://www.thestatesman.com/bengal/hospitals-run-out-injections-for-haemophilia-treatment-1503318679.html
Food for thought for the bleeding disorders community
https://hemophilianewstoday.com/columns/food-thought-bleeding-disorders-community
Remembering treatment protocol when an emergency occurs
https://hemophilianewstoday.com/columns/remembering-treatment-protocol-when-emergency-occurs/
Hemophilia – Very exciting developments | Dr. Eman Mansory
https://www.youtube.com/watch?v=h5cZwiGRFAU
Passing the baton to a new team in my son’s hemophilia care
https://hemophilianewstoday.com/columns/passing-baton-new-team-my-sons-hemophilia-care/
Me and my son had the opportunity to go to a phillies baseball game
https://www.tiktok.com/@briaattiyah/video/7392247280432155934
CSL Behring reports first two haemophilia B patients treated with etranacogene dezaparvovec gene therapy in Europe
https://www.pharmabiz.com/NewsDetails.aspx?aid=170157&sid=2
Check out our Library of resources for women with bleeding disorders!