We are nearing the end of 2024 and couldn’t let the year come to a close without saying a huge THANK YOU to all of our donors, supporters and friends of CHES!  This one quote from the After the Shock Inhibitor Camp offers a demonstration of CHES’s impact: “The only way out of darkness is light, which is this camp.”  

CHES is grateful to each and every one who attended a CHES event, amplified the community connections, and supported the critical and unique ways in which CHES is providing education and awareness within the bleeding disorders community. 

As we set our intentions for 2025, we are hoping to attract new donors and supporters to our expanding slate of programs and events. We welcome whatever you can afford, every dollar makes a difference. To learn more about CHES’s end of year campaign, please visit Donate & Fundraise — Comprehensive Health Education | Rare Bleeding Disorders.

Best,
Heather Case
Director of Advocacy and Outreach

Funder Recognition

CHES is grateful to our Silver Sponsors for the LadyBugs 2024 conference which took place in Wilmington, NC this past weekend.

Novo Nordisk is a global healthcare company committed to discovering and developing innovative medicines to help people with serious chronic conditions and rare diseases lead longer, healthier lives. We do so by pioneering scientific breakthroughs, expanding access to our medicines, and working to prevent and ultimately cure life-threatening diseases.

At Sanofi, treating rare blood disorders isn’t just what we do – it’s who we are. Because rare is in our blood. It’s why we strive to make a difference in the lives of patients, caregivers, and physicians. It’s why we pursue the best possible therapies, services, and resources. Why we research, develop, and discover our global scale to create a true, lasting difference. From pipeline to patients, we know that our commitment has the potential to truly transform. To shift the trajectory, to change lives.

Takeda Hematology – A Legacy of Commitment. 70+ years of commitment to the Bleeding Disorders Community with the first recombinant treatments for hemophilia A and von Willebrand disease (VWD), the first prophy indications in hemophilia A and VWD and 8 products across 10 indications in the U.S.

Goals of Care
https://www.novanthealth.org/healthy-headlines/this-doctors-question-what-makes-your-life-sparkle

Glanzmann's Thrombasthenia
https://www.cureus.com/articles/303629-clinical-management-of-a-rare-hereditary-bleeding-disorder-in-an-adult-glanzmann-thrombasthenia#!/

https://onlinelibrary.wiley.com/doi/10.1111/hae.15126?af=R

Thrombocytopenia
https://www.nature.com/articles/s41467-024-54093-5

https://pubmed.ncbi.nlm.nih.gov/39231703/

Hemophilia
https://hemophilianewstoday.com/news/clotting-factor-proteins-affect-bone-cell-activity-study/

https://www.hematologyadvisor.com/news/hemophilia-rixfp-superior-performance-b-model-treatment-risk/

https://www.hematologyadvisor.com/news/hemophilia-dental-procedures-fibrin-sealant-superior-patients-treatment/

Advocacy 
https://www.bendbulletin.com/opinion/guest-column-state-rep-emerson-levy-delivers-on-meaningful-solutions/article_3a45ecd6-8cee-11ef-b8a4-174f4d3e5139.html

CHES's OneDrop 
https://hemophilianewstoday.com/columns/one-drops-impact-those-ultrarare-bleeding-disorders/

Hemophilia Clinical Trial updates
https://onlinelibrary.wiley.com/doi/10.1111/bjh.18495

https://www.rpthjournal.org/article/S2475-0379(22)01170-0/fulltext

CHES Events
CHES's women's event, LadyBugs, happened last weekend in Wilmington, NC in partnership with the Bleeding Disorders Foundation of North Carolina (BDFNC).  We welcomed 40 women with bleeding disorders for empowering sessions tailored to meet the educational needs of the community. We could not have done it without the support of our National Sponsors; Hema Biologics, Novo Nordisk, Sanofi, Takeda and the local Sponsors; BioMatrix, CSL Behring, Next Step Pharmacy, Novo Nordisk, Pfizer and Sanofi. A special thank you to Dr. Rebecca Jameson and Dr. Jill Johnsen who led LadyBugs educational sessions and to Gillian and Nick from BDFNC for their collaboration in running this event!  

"This event was SO GOOD and very empowering. [We] were honored to be guests. We learned so much! But more importantly we met new friends and connected with other women. Our sisters."

2025 Events
If you are interested in learning more about CHES's critical in person community educational events in 2025, please visit the CHES website. Planning for our 2025 events is well underway and we are excited to share education, connections and community with you! 

Hermanas de Sangre Video Premiere: December 9th
Join CHES for the Hermanas de Sangre video premiere! The video features 8 Spanish speaking women affected by bleeding disorders and is a mix of patients, caregivers, moms, and advocates, all with a different diagnosis. The purpose is to create support, education and connection to the Hermanas de Sangre community. 
For more information about Hermanas de Sangre and to get involved, visit Hermanas de Sangre Campaign — Comprehensive Health Education. This project is made possible with the support of a Sanofi Health Accelerator Award.

¡Únete a CHES para el estreno del vídeo Hermanas de Sangre! El video presenta a 8 mujeres de habla hispana afectadas por trastornos hemorrágicos y es una combinación de pacientes, cuidadoras, madres y abogadas, todas con un diagnóstico diferente. El propósito es crear apoyo, educación y conexión con la comunidad de Hermanas de Sangre. No estamos solas.
Para obtener más información sobre Hermanas de Sangre y participar, visita la Campaña Hermanas de Sangre - Educación  Sanitaria Integral . Este proyecto es posible gracias al apoyo de Sanofi Health Accelerator Award.

Check out our Library of resources for women with bleeding disorders!