Advisory Board Opportunity - ref# HB5126

We have a paid opportunity for adult patients with HEMOPHILIA A or B and INHIBITORS  that is sponsored by a company who has a treatment for this condition.  Chosen participants would be required to attend an on-site meeting.  Availability is limited, so please apply promptly.

WHAT TO EXPECT

Within these types of meetings, participants are generally asked to share personal experiences from living with a chronic condition along with their opinions of treatment options, needs, challenges, etc.

This opportunity is for:

  1. Patients 18 years of age and older, or

  2. Caregivers of patients ages 12-17

    Patients must be previously diagnosed by a physician with Hemophilia A or Hemophilia B with an active* Inhibitor. Proof of diagnosis may be required.

Restrictions:

  • *Only individuals who currently have a measurable inhibitor titer will be considered. Those who have tolerized do not qualify.

  • No accompanying guests will be financially covered in any way, or be permitted to join the meeting. U.S. residents, only.

DATES: *All referenced times are in Central Standard Time.

  • Friday, August 7th (day 1) - Saturday, the 8th, (day 2) 2026

  • Participants will arrive in Dallas, TX on Day 1 and must be available for a welcome reception/dinner that evening (after 6pm).

  • The meeting will take place on Day 2 and run from 8:30a-3:30p with breakfast at 7:30a and lunch/snacks provided throughout the day.

 
 

LOCATION:

Grand Hyatt DFW (Airport)

2337 South International Parkway

Dallas, TX 75261-9045 

 

REIMBURSEMENT FOR TIME & EXPENSES:

Accepted applicants will receive:

  • One (1) round-trip airfare ticket departing from a nearby airport to arrive in Dallas no later than the afternoon of Day 1 and departing Dallas no earlier than the evening of Day 2 to return home.

  • Hotel accommodations are provided the night of Day 1, checking out on Day 2.

  • Fair market value compensation for

    • Travel time

    • Meeting time

  • Meals provided

    • Day 1 - Dinner

    • Day 2 - Breakfast, lunch, & snacks

 
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COVERED EXPENSES:

Only expenses that fall inside the Advisory Board dates (day 1 & day 2) are reimbursable.

  • Travel to/from home and airport (mileage for personal car or fees for a taxi/Uber/Lyft)

  • Fee for one (1) checked bag

  • Airport parking

  • Meals during travel time (limitations apply)

  • If driving to Dallas rather than flying:

    • Mileage will be reimbursed comparable to the government rate

    • Hotel parking

Itemized receipts must be provided for all reimbursable expenses.

 

Expenses NOT covered include, but not limited to:

  • Any hotel accommodations outside of Advisory Board dates

  • Hotel incidentals, including room service, entertainment, mini bar and snack purchases, phone charges, and room damages

  • Any additional meals purchased outside of the travel windows will not be reimbursed

  • Candy, gum, alcohol and other similar items

 
Apply

Note: Qualifying participants must be chosen by the sponsor to attend.  There are no guarantees for admittance upon the conclusion of the screening process.  Please feel free to pass this message on to others who you think may qualify.

If you have trouble using the button above, or you have any further questions, you may email Eric directly at: elowe@ches.education