Consumer Council Opportunity - ref# V8254

We have a paid opportunity for adult patients AND/OR caregivers (of someone) with HEMOPHILIA A or B with an INHIBITOR that is sponsored by a company who has treatment for this condition.  Chosen participants would be required to attend a consumer council meeting on-site.  But there is limited availability, so please apply quickly.

WHAT IS THIS?

Within these types of meetings, participants are generally asked to share personal experiences from living with a chronic condition along with their opinions of treatment options, needs, challenges, etc.

This opportunity is for:

  • Diagnosis requirement: Must be diagnosed by a physician with Hemophilia A or Hemophilia B with an Inhibitor. This includes:

    • Individuals 18 years or older who meet the diagnosis requirement.

    • Parents/caregivers of a minor who meets the diagnosis requirement.

  • All severity levels are acceptable.

  • Both men and women are welcome to apply!

  • Participants must be willing to share their experiences and thoughts while being respectful to other people and different opinions.

  • No accompanying guests will be permitted. U.S. residents, only.

DATES

  • BEGINS: Friday, May 16, 2025

  • ENDS: Saturday, May 17, 2025

Schedule:

  • Day #1 - Participants will arrive in Dallas, TX for a welcome reception/dinner that evening. Dallas-Fort Worth (DFW) International is the nearest airport for guests flying in.

  • Day #2 - The meeting will begin approximately from 8:30a-3:30p to allow guests ample time for departures to return home later in the evening/night. Breakfast and lunch provided.

All referenced times are in Central Standard Time.

ACCOMODATIONS & REIMBURSEMENTS

Accepted applicants will receive:

  • One (1) round-trip airfare ticket departing from his/her nearest airport, arriving in Dallas-Fort Worth International Airport no later than the afternoon of 5/16/25, and departing Dallas no earlier than late afternoon/early evening on 5/17/25 to return home.

  • Hotel accommodations are provided for one (1) night only.

  • Fair market value compensation for Meeting time - $1,000.00 minimum

  • Meals provided

    • Day #1 - Dinner

    • Day #2 - Breakfast and lunch

 
 

Covered (reimbursed) expenses:

  • Travel to/from home and airport (mileage for personal car or fees for a taxi/Uber/Swift)

  • Checked bag fees

  • Airport parking (for Day #1 - Day #2, only)

  • Meals during travel time

  • If driving rather than flying, mileage will be reimbursed comparable to the government rate, as well as hotel parking for day #1 - day #2.

*Itemized receipts must be provided for all reimbursable expenses.

 

Expenses NOT covered include, but not limited to:

  • Any hotel accommodations outside of day #1 and day #2

  • Hotel incidentals

  • Any additional meals purchased outside of the travel windows will not be reimbursed

  • Candy, gum, alcohol and other similar items

 

APPLY NOW

Note: Qualifying participants must be chosen by the sponsor to attend.  There are no guarantees for admittance upon the conclusion of the screening process.  Please feel free to pass this message on to others who you think may qualify.

If you have trouble using the button above, or you have any further questions, you may email Eric directly at: elowe@ches.education