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Individuals with Glanzmann’s Thrombasthenia (GT) are a very small group within the bleeding disorder community with a unique set of needs for education, advocacy and support.  The GT Summit is intended to bring those affected by this very rare bleeding disorder together to establish a community.  Over the years, CHES has seen the benefits of these programs for families and individuals where participants finally feel as though there is someone else out there who truly understands their unique needs.

Thanks to the support of an educational grant from Novo Nordisk, CHES can provide this program to individuals and their families at absolutely no cost.  See the FAQs below for more details.

Join us for a weekend of education, support, and fun for those affected by GT and their families.

Supported by an educational grant from:

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Scheduled:

Friday, April 26 - Sunday, 28, 2019

Hilton Austin Airport Hotel
9515 Hotel Drive
Austin, TX 78719

Reminders

We can send you reminders when new information is released about the GT Symposia, such as dates, locations, and the start of open registration.

*If you’ve completed the notification sign-up form in the past, it is not necessary to fill it out again. We keep your information to use each and every year!  If your information has changed, please complete this form once again.

2019 Registration:

CLOSED

(Closed on 3/31/19 at 11:59p (EST))

Applicants must pre-register for screening purposes before completing the primary registration requirements.

Acceptance to attend will be determined by CHES as we have many variables to consider. Preference will be given to first-time attendees.

*If you have already pre-registered but still need to complete the Physician Verification Form of Diagnosis, please use this button to open it.


For questions on who can attend and more:
View the Frequently Asked Questions below  -  Email us at info@ches.education  -  Call (781) 878-8561

What to Expect

Fly into the Austin-Bergstrom International Airport on Friday morning/afternoon, followed by a 15-minute transport to the Hilton Austin Airport Hotel, where we will be staying for the weekend.

After check-in and registration, we will get together for dinner to make new friends, connect with FaceBook friends and begin the process of creating a support network for the GT community.

After breakfast on Saturday morning, our full day of sessions begins with speakers on topics such as Glanzmann’s Thrombasthenia 101, and future research, bio-psychosocial issues, insurance and more!

Childcare will be provided for children ages 0-12 with a field trip for ages 3-12 to The Thinkery.

Teens will have their own separate track.   Saturday evening, we will enjoy a little free time, dinner, and entertainment as we continue building relationships within the community.

Sunday morning, we will finish off the weekend with a wrap-up and goodbyes.


FAQ

Who can attend?
Anyone with a diagnosis of Glanzmann’s Thrombasthenia is invited to attend with any or all of their immediate family members (those who live in the same household.)  However, CHES works diligently to create a patient-centric experience and an environment that fosters relationships at a psychosocial level; therefore, at least one individual with the diagnosis must be present during the course of the program.

U.S. residents only.

Where is the nearest hospital?
St. David’s South Austin Medical is just 19 minutes away from the hotel.

Will the location be accessible to wheelchairs and other mobility devices?
Absolutely!

Will there be medical coverage?
The nearest HTC is The Central Texas Center for Bleeding and Clotting Disorders just 45 minutes away.

What should I bring?

Your factor and supplies, as there will not be any on site.  Also bring your enthusiasm and willingness to reach out so we can learn from each other! 

How much does it cost to attend?
There are no costs associated with attending once the trip is completed. Because of numerous, last-minute cancellations, we will be enforcing fully refundable deposits for those who attend the program. Deposits will be set at $25/person, not to exceed $100/family.  Travel related expenses including tolls, mileage and parking will still be reimbursed. Air transportation will be arranged for you.  All meals will be provided on site. Learn more on our policies and guidelines page.

What should I bring?

Your factor and supplies, as there will not be any on site.  Also bring your enthusiasm and willingness to reach out so we can learn from each other!

Will there be child care available?
Childcare will be provided on site during educational sessions for ages 0-12.  A field trip is available for children ages 3-12, and teens will have their own separate sessions all weekend.

What about patient confidentiality?
Information that you share or hear will be treated with the utmost respect and never disclosed without your permission.  We want participants to feel comfortable so that we may support one another.