Study Opportunity - ref# H251201

An Observational Study Opportunity is available for individuals with VonWillebrand Disease (VWD). Chosen participants would primarily be required to journal their recordings of their bleed experiences.  The study is sponsored by HEMAB, a company who has a therapeutic focus for this VWD.

But there is limited availability, so please apply quickly.

WHAT IS THIS?

An exciting new study is open for individuals with VonWillebrand Disease (VWD).

The study includes a:

  1. Screener to apply

  2. Baseline evaluation

  3. Observation period (approximately 4 months) which will include telemedicine check-ins (every other week) to monitor bleed diary entries and bleeding event treatments


This stage of the study, as a whole, is strictly observational to record information regarding bleeding events, quality of life, and the social and clinical impact of bleeds.  No experimental medications will be administered.  But availability is limited, so those interested should apply at their early convenience by completing the screener.

This opportunity is for:

  1. Patients 16 years of age and older

  2. Participants must be previously diagnosed by a physician with VonWillebrand Disease (VWD)

  3. Both men and women are welcome to apply!

DATES

Enrollment is currently open and expected to close the summer of 2026 or until availability runs out.

LOCATIONS

Currently, 9 Hemophilia Treatment Centers throughout the United States are enrolling participants.

Phoenix Children's Hospital

Phoenix, Arizona, United States, 85016

Arkansas Children's Hospital

Little Rock, Arkansas, United States, 72202-3591

University of Miami Hospital and Clinics, Sylvester Comprehensive Cancer Center

Miami, Florida, United States, 33136

Emory Children's Center

Atlanta, Georgia, United States, 30329

Innovative Hematology, Inc./Indiana Hemophilia and Thrombosis Center

Indianapolis, Indiana, United States, 46260

Tulane University School of Medicine

New Orleans, Louisiana, United States, 70112-2699

University of Michigan Hospitals, Department of Hemophilia and Coagulation Disorders

Ann Arbor, Michigan, United States, 48109

Mayo Clinic - Rochester (Not yet recruiting)

Rochester, Minnesota, United States, 55905

Oregon Health & Science University (Not yet recruiting)

Portland, Oregon, United States, 97239-3098

The University of Texas Southwestern Medical Center

Dallas, Texas, United States, 75390

Washington Institute For Coagulation (WIC)

Seattle, Washington, United States, 98101

 

APPLY NOW

SCREENER

Note: Qualifying participants must be chosen by the sponsor to participate.  There are no guarantees for admittance upon the conclusion of the screening process.  Please feel free to pass this message on to others who you think may qualify.

If you have trouble using the button above, or you have any further questions, you may email Eric directly at: elowe@ches.education