A conversational mix of light-hearted testimonies and eye-opening articles created to promote self-advocacy for women who experience abnormal bleeding
A clinical collection offering support and awareness of diagnosed and undiagnosed women (who show symptoms) of a bleeding disorder facing inequity in healthcare
The following collection is a mix of light-hearted testimonies and eye-opening articles created to promote self-advocacy for women who experience abnormal bleeding.
More targeted research should lead to greater healthcare empowerment for all…
Jennifer hopes her column will raise awareness for hemophilia and other bleeding disorders, especially among women…
Heavy menstrual bleeding known as menorrhagia is a common disorder among women who experience intensive menstruation bleeding during their periods…
In addition to heavy menstrual bleeding, a vitamin D deficiency during puberty can also lead to an increased risk of bleeding disorders…
Dr. Cron points to von Willebrand disease, a clotting disorder, as a particularly common example of an inherited blood disease…
March is Bleeding Disorder Awareness Month, and Kimber Blackwell is using her struggle to educate people about rare blood...
Hemophilia is a rare bleeding disorder. For many years, people believed that only men and boys could have symptoms of hemophilia. We now know that...
Sharing stories about life, marriage, and the journey to a hemophilia diagnosis…
Some less common causes include infections, cervical polyps, and bleeding disorders. APH can cause death. Get emergency care if you bleed enough...
"Sometimes it can be lonely because all I have is me and my mom, but when I do have a blood transfusion with Kamila, it feels a hundred times...
Women with immune thrombocytopenia (ITP) do not have increased risk of severe bleeding during pregnancy…
From the time of year when there's a greater risk to identifying blood disorders that could be to blame.
A pair of Floridians discuss the problems of the most common bleeding disorder…
Brian O'Mahony, CEO of the Irish Haemophilia Society (IHS), said: “Because VWD is a genetic bleeding disorder, one person's diagnosis often leads to a...
Reviewing the management of pregnancy women with some inherited bleeding disorders in particular those affected by hemophilia A, hemophilia B and...
For Seremetis, who aimed to continue her work on clinical trials in blood disorders at Novo Nordisk during the pandemic, the move to decentralization...
“One unifying diagnosis is an underlying bleeding disorder”, Sandoval said. He stressed that a hematologist should check women with iron deficiency for...
Chronic diseases are characterized by long-lasting effects that require continuous medical attention. They include some of the leading causes of...
As a person with multiple bleeding disorders, I’m an expert at removing blood from many materials, including carpet, clothing, and furniture. Sometimes the blood...
Most hematologists do not specialize in bleeding disorders. I suggest you…
Its researchers also found a higher rate of bone problems among people with vonWillebrand disease (vWD), another inherited bleeding disorder. “This...
To mark Bleeding Disorders Awareness Month, columnist Jennifer Lynne shares some of her difficult experiences with hemophilia B.
The lack of awareness toward women's bleeding disorders can leave those affected invisible to the health-care system…
The following collection is available to offer support and awareness of diagnosed and undiagnosed women (who show symptoms) of a bleeding disorder facing inequity in healthcare.
*Please note, some papers are only available through purchase and/or a subscription with the publisher. But the abstracts and other partial information are available free of cost. These papers have been identified for your convenience.
Despite therapeutic advances in bleeding disorder treatment, over the past 20 years women with bleeding disorders have reported delayed diagnosis, impaired quality… symptoms were heavy periods (81%) and…
Cited by 5 Related articles All 3 versions
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Women and girls with bleeding disorders experience abnormal and excessive bleeding that can negatively impact their overall health and quality of life… an overview of the biology, types, clinical care…
Cited by 4 Related articles All 3 versions
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This review provides a clear picture that the lived experience of women with bleeding disorders is negatively affected by lack of support from health providers… There is a need for further studies to confirm these findings.
…many women with an undiagnosed bleeding disorder will present to gynaecology services with heavy menstrual bleeding…
Cited by 4 Related articles All 3 versions
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Patients with a bleeding tendency with normal laboratory tests have been described as having an unclassified bleeding disorder or bleeding disorder of unknown cause…
Cited by 1 Related articles All 4 versions
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Up to 1% of cisgender women and girls have an inherited bleeding disorder… researchers worked together to identify the research that would most improve the lives…
…study was to describe the experiences of adolescents with HMB with a BD…We identified the following themes in nine participants: anxiety…
The clinical spectrum of gynecologic and obstetric bleeding in AYA with IBDs ranges from heavy menstrual bleeding, ovulation bleeding, and surgical bleeding to miscarriages and life-threatening PPH.
…create a national research blueprint agenda, led by the National Hemophilia Foundation (NHF), enhancing patient-centric principles, accelerate research progress and address important gaps in care.
The inclusion of women and girls with bleeding disorders in… Women with factor VIII (FVIII)
and factor IX (FIX) levels less… and other rare bleeding disorders are being recorded more…
…should be taken into consideration in pregnant women since bleeding disorders might
pose difficulties for pregnancy and childbirth in women. During a typical pregnancy, levels of…
Report on the rate of amenorrhea among adolescents and young adults with a bleeding diathesis after insertion of the 52-mg levonorgestrel intrauterine system (LNG-IUS)…
Cited by 10 Related articles All 4 versions
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Currently, it is unknown which patient-reported outcomes are important for patients with autosomal inherited bleeding disorders. Therefore, the purpose of this study is to systematically review … measurement methods in autosomal inherited bleeding disorders.
…392 patients… were investigated for the recurrence of bleeding events. During the follow-up time… 72% of patients had at least 1 bleeding event.
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Working Group 1 defined 63 top priority research questions concerning arthropathy/pain/bone health, inhibitors, diagnostics, gene therapy…
…we enrolled adolescents with heavy menstrual bleeding without BD…. Two hundred and fifty consecutive adolescents were enrolled…43%… were diagnosed with BD.
…not ensured for all people with inherited bleeding disorders. Ultra-rare inherited BDs, bleeding that particularly impacts women and other people with the potential…
Two-thirds of women treated with anticoagulation for acute VTE (venous thromboembolism) met the criteria for AUB (abnormal uterine bleeding) with a considerable negative impact on their quality of life (QoL).
Research is critical to advancing the diagnosis and care of people with inherited bleeding disorders (PWIBD). This research requires significant infrastructure, including people and resources. Hemophilia treatment centers (HTC) need many different skilled care professionals including…
The aim of this study is to compare the patient-reported bleeding outcomes and … menstrual bleeding (HMB) among adolescents with and without a diagnosed inherited bleeding disorder…
Cited by 2 Related articles All 7 versions
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