The LadyBugs program empowers women ages 16+ with SHEmophilia (who are diagnosed with a clotting factor deficiency), care for someone, or carry any other bleeding disorder. The program’s goal is to assist women to find their voice when it comes to decision making about the health of themselves and their loved ones.
Our goal is to provide education about medical developments, advocacy skill building, stress management techniques and more to encourage women to recognize that their health is equally important.
Continuing The Legacy
CHES is proud to call Barb a long-standing friend. We have collaborated on many projects and created the very first weekend long program for families affected by FVII deficiency; fulfilling a long time dream for Barb. At its’ core, LadyBugs remains a program uniquely tailored to the needs of women with bleeding disorders, carriers and mothers’ of children with a bleeding disorder.
CHES endeavors at this time to carry on Barb’s legacy as the new providers of the LadyBugs Program. We are honored to continue her work on behalf of all women with bleeding disorders (WWBD). The LadyBugs program empowers women to find their voice when it comes to decision making about the health of themselves and their loved ones. The goal of our weekend-long program is to provide education about medical developments, advocacy skill building, stress management techniques and more to encourage women to recognize that their health is equally important.
Friday, July 19th - Sunday, the 21st, 2019
Eldorado Hotel - 309 W. San Francisco, Santa Fe, NM 87501
2019 Registration: CLOSED
Opens Friday, May 10th, 2019 at 9a (EST)
Don’t forget to sign up for Notifications so you know when important dates and special announcements are released.*
We can send you reminders when new information is released about LadyBugs, such as dates, locations, and the start of open registration.
Complete your communications profile to choose what you want to keep up on.
*If you’ve completed the notification sign-up form in the past, it is not necessary to fill it out again. We keep your information to use each and every year! If your information has changed, please complete this form once again.
Why a Ladybug?
Ladybugs actually bleed from their knees when threatened. As a defense mechanism, the ladybug secrets a foul-tasting, yellow fluid from their knee joints to deter predators.
What to expect?
Be prepared for a fun, social experience where we may get to know others who share our same struggle.
This weekend is packed full of education, support, laughs and tears. Meet us for registration and a social hour Friday evening at dinner. Saturday will be filled with sessions and opportunities to meet others like you.
Sunday, we’ll finish up with a wrap and say our good-byes.
As LadyBugs is designed to meet YOUR needs only; we ask for you to make child-care arrangements accordingly.
History of the LadyBugs Foundation
Barb Forss founded the LadyBugs Foundation in 1998 after she was diagnosed with FVII deficiency. A diagnosis that led her on a medical journey of nearly forty years to achieve after being told mostly by male doctors, that women do not bleed.
She recognized the need for women to network with other women with bleeding disorders to provide them the education needed to advocate for themselves. Barb has continued her work through empowering presentations at the chapter, national and international level.
Please note, 2017 was the first year we made this program national as a pilot program. As pilot programs go, budgets are lean, and we continue to seek funding for this invaluable program each year. Accepted participants will be reimbursed for mileage or provided with airfare and incidentals during travel to/from the program site.
Space was limited in 2018 and it is unknown how many women we can accommodate for 2019 right now. Acceptance to attend will be determined by CHES as we have many variables to consider. Preference will be given to first-time attendees. Please register as soon as possible and we will do everything in our power to secure your spot.
Who can attend?
The LadyBugs program is designed for women 16 and older who are mothers, caretakers, siblings and women with a bleeding disorder. U.S. residents only.
How much does it cost to attend?
There are no costs associated with attending once the trip is completed. Because of numerous, last-minute cancellations, we will be enforcing fully refundable deposits for those who attend the program. Deposits will be set at $50/person. Travel related expenses including tolls, mileage and parking will still be reimbursed. Air transportation will be arranged for you. All meals will be provided on site. Learn more on our policies and guidelines page.
Will the location be accessible to wheelchairs and other mobility devices?
Will child care be available?
Due to limited funding, childcare will NOT be provided at this time.
What about patient confidentiality?
Information that you share or hear will be treated with the utmost respect and never disclosed without your permission. We want participants to feel comfortable so that we may support one another.