PROGRAM CANCELLATION POLICY

Updated 2/9/2026

In years past, CHES waived registration costs for select programs and then moved to refundable deposits. These fees were put in place to combat the loss of funds that occur when participants/families canceled. At this time with the reduction in our current funding climate, we are no longer able to provide refundable deposits and must implement registration fees.

• All Event Registration fees: $25/person with a cap of $100 for families over 4+ persons

CHES covers the cost of flights and hotel nights for the event dates. As the dates approach for our conferences and camps, at certain intervals we cannot recoup the costs of hotel nights nor flights if attendees cancel. An email or text message is no longer an acceptable form of cancelation. A phone call must be placed to one of our team members. Cancelations without a valid and reasonable situation that occur the week of the event will have the following impacts:

• Cancelations prevent allocated funds from being utilized for those who would have otherwise committed to attending the event

• Attendance consideration will be affected for future events

• You may be responsible for the cost of the flights and/or hotel nights.

CHES Foundation is committed to continuing these valuable programs with your help. Would your family consider making a tax- deductible donation to help cover travel costs for your family to attend. Think you can help? Please email us directly at info@ches.education

We thank you in advance for your assistance in maintaining the continuation of these valuable programs.

PROGRAM ATTENDANCE POLICY

Updated 1/4/2025

Everyone who attends a CHES event, regardless of role (staff, attendee, industry, speaker, etc.) must be engaged and active in the learning process. If you register for an event and do not attend, or attend the event and skip the sessions, not only do you miss out on educational content but you also are taking the place of someone else who could have benefited from CHES's education. If you skip educational sessions, your eligibility for attendance at future events WILL be impacted. Your reimbursement expense report will be impacted or refused all together if you do not participate or skip mandatory activities and sessions.  Attendance at CHES events implies an active participation in creating a safe and inclusive space for everyone. The CHES Code of Conduct is outlined in the application for each event.

PROGRAM REIMBURSEMENT GUIDELINES

Updated 2/9/2026

CHES will provide reimbursement for some travel-related expenses incurred while you are traveling to/from a program within the designated dates.

NOTE: Funding options and opportunities are changing due to pharma guidelines and market shifts. This can affect each program in many ways, but especially how and if travel-related expenses are covered.

Reimbursable Expenses Include:

• Flying

  • Parking at the airport OR arranged ground transportation to your home airport such as an Uber, Lyft or taxi.

    • Limitations:

      • 1 vehicle per party if you are parking at your home airport

      • Any parking charges that occur outside of the program dates will NOT be reimbursed

  • Checked bags fees (After the Shock - Inhibitor Camp ONLY)

    • Overweight bag fees not covered

    • 2 Bag Limit per family

  • Ground transportation between the airport and the program site if an airport shuttle is not available

• Driving

  • Mileage at the rate of $0.76/mile (per the IRS) between your home and program site

  • Hotel parking (limit - 1 vehicle per party)

  • $20 for a meal/person. Not to exceed 2 meals/pp per day.

  Note: ORIGINAL ITEMIZED RECEIPTS MUST BE PROVIDED WITH YOUR REIMBURSEMENT FORM AND PROGRAM EVALUATION SHEET REQUIREMENTS MUST BE SATISFIED.

________________________________________

Non-Reimbursable Expenses:

• For those flying

  • Mileage between your home and the airport

  • Airport parking prior to or proceeding the program dates

  • Food while traveling between your home and the program.

    • TSA will allow dry foods and snacks through security.

• For those driving

  • Parking at the program site for more than one vehicle, or for days outside of the program date

  • Certain food items such as candy, gum, and alcohol

    • Limitations still apply for amount of reimbursable foods.

• All Travelers (non-specific to flying or driving)

  • Hotel room charges and incidentals prior to or proceeding the program dates

  • Non-itemized receipts that include the total and not a list of goods that specify what was purchased

  • Certain food items such as candy, gum, and alcohol

FAQs - VIRTUAL FORMAT

Who can attend?

Each program is created for specific diagnosis’ and varies from strict guidelines limiting availability to patients while others may allow for caregivers, family members, and more. Please see details for admission for each program by visiting the program pages.

Select programs offer a hybrid virtual option, which create little to no additional costs to facilitate. For such instances, participants residing outside of the U.S. may also be welcome to join us. Some restrictions may apply. CHES Foundation cannot guarantee free shipping of collaterals, brochures, giveaways, or any other items regularly provided for the conference to non-U.S. residents.

How long do your programs run?

Each meeting will slightly vary, but will last 45-90 minutes unless otherwise stated.

What is the format? And what do I need to participate?

In light of safety precautions set in 2020, select programs will offer a virtual option using the Zoom platform. Participants can connect using the equipment described below as well as the downloadable app, called Zoom. If you prefer not to download the app, connectivity is also available through a web browser on Zoom.us.

Participants should have equipment to meet the technological needs of the program, such as a viewing device (like a desktop computer, laptop, WiFi enabled tablet, or a smartphone), a microphone and camera (if your viewing device is not equipped with one), and an internet connection with minimal speeds of 1.5 Mbps (both up and down.)  There are multiple free websites to check your internet speed.  One example is SpeedTest.net.

How much does it cost to attend?

Virtual programs are entirely free. You should not feel pressured, but donations are greatly appreciated. Funding is drastically changing for programming, so if you are willing and able, any donated amount would be set aside to help preserve the future of our programs.

Attendees outside of the U.S. may be subject to long-distance phone charges if they choose to dial-in by phone rather than connect via internet connection through the Zoom platform.

What about patient confidentiality?

Information that you share or hear will be treated with the utmost respect and never disclosed without your permission.  We want participants to feel comfortable so that we may support one another. All participants 18 and older are required to electronically sign a confidentiality agreement. See complete confidentiality agreement.

How does CHES Foundation fund programming?

CHES competes rigorously for grants provided by manufacturers to support educational programming. We are a 501(c)3 who strives to fill the gaps within patient communities through education, conference scholarships, financial assistance, and more.

Are your education teachings and sources credible?

We use hand-picked medical professionals for any clinically-related topics that may be covered.  We ensure that all of our presenters are certifiable experts on the topics they present on, so you can have real, productive conversations with your doctor about treatment and health options.

Are we missing your question?

Email us at info@ches.foundation. Chances are - if you have a question, someone else has that same one. Let us know so we can add it to our list.

PRIVACY POLICY NOTICE

Updated May 1, 2026

The following notice can be provided for data subjects (those who we obtain PI on) per his/her request for an explanation of how their data will be used, the lawful basis for processing and informing individuals of their rights under Data Protection Regulations.

At CHES Foundation, Inc, your privacy is our priority. We are the sole owner of this information, and we do not rent, sell, or share with anyone. The information we collect is provided directly by you, our participants. 

This describes how we collect, use, and disclose your personal information when you visit or make use of our services at www.ches.education or CHES social media channels.

1. Information We Collect

We collect information that identifies, relates to, or describes you ("Personal Information"). This may include:

• Information You Provide Directly: Name, email address, address (physical and electronic), phone number (s), diagnosis, ages, birthdates, family member (including children’s) names, healthcare professional contacts, medication/treatment information and payment information when you register or make a purchase.

• Information Collected Automatically: Your IP address, browser type, operating system, device details, and browsing behavior on our site collected via cookies and tracking pixels.

• Third-Party Data: Information we receive from social media platforms (such as engagement and behavioral metrics, age range, general geographic location, and spoken language) if you log in using suchthose services.

2. How We Use Your Information

We use the collected information for various business purposes, including to:

• Provide, operate, and maintain our website and services.

• Process transactions and send related confirmations or invoices.

• Improve, personalize, and expand our website functionality.

• Communicate with you, including reasons for services, education, and information.

• Detect and prevent fraudulent transactions and protect our security.

3. Sharing and Disclosure of Information

We do not sell your personal information. We may share your data with trusted third parties only in the following circumstances:

• Service Providers: Vendors who assist with payment processing, travel, data analysis, email delivery, hosting, and customer service.

• Legal Obligations: When required by law, subpoena, or government enforcement agencies

4. Cookies and Tracking Technologies

We use cookies, web beacons, and similar tracking technologies to track activity on our Site and hold certain information. You can instruct your browser to refuse all cookies or to indicate when a cookie is being sent, though some parts of our Site may not function properly if cookies are disabled.

5. Children's Privacy

Our services are not directed to individuals under the age of 13 (or 16 in certain jurisdictions). We do not knowingly collect personal information from children. If we become aware that a child has provided us with personal data, we will take steps to delete it immediately.

6. Your State-Specific Privacy Rights

Depending on where you reside in the US (such as California, Virginia, Colorado, Connecticut, or Utah), you may have specific rights regarding your personal information, including:

• The Right to Know/Access: Request details about the personal data we collect and share.

• The Right to Delete: Request the deletion of your personal data.

• The Right to Correct: Request corrections to inaccurate personal data.

• The Right to Opt-Out: You may opt out from receiving communications from us at any time.

To exercise any of these rights, please contact us using the information below.

7. Contact Us

If you have any questions or concerns about this Privacy Policy or our data practices, please contact us at:

• Company Name: CHES Foundation, Inc

• Email: info@ches.education

• Phone: 781-878-8561

• Mailing Address: 16049 Chapel Park Ct Noblesville, IN 46060

CHES Foundation Inc’s Privacy Policy is a progressive document meaning it evolves and changes based on the needs of our constituents and our organization. This policy was last updated May 2026. 

View our SMS Terms

Some PI may be shared internationally with 3rd party vendors to satisfy the needs for any of the above.  We take your privacy very seriously.  Safeguards have been established and are practiced to ensure the safety of your PI to the best of our ability in respect to the GDPR which is considered safe practices to the EEA (European Economic Area).