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POLICES & REIMBURSEMENT GUIDELINES

PROGRAM CANCELLATION POLICY

Effective 1/1/2019, Updated 3/27/2024

In years past, CHES implemented registration costs for select programs. These fees were put in place to combat the loss of funds that occur when participants/families canceled and were structured as such:

• Event deposits for individuals: $50

• Events deposits for families: $25/person with a cap of $100 for families over 4+ persons

Deposits will be returned to the participant or family once they have attended the event in its entirety and the event has concluded.  There will be an option to donate the registration deposit to CHES Foundation to help other bleeding disorders families in need of assistance.

If attendance of a participant or family cancels their spot at one of our events after travel registration has been completed, the deposit will not be returned.

We apologize for any inconvenience this may cause our participants as we understand how tough commitments are and how priorities change suddenly. At this time, cancellations are affecting the number of people we can serve.

After the Shock - Specific

Deposits for After the Shock 2024 will be returned to the participant or family once they attended the event in its entirety and the event had concluded. 

With tighter budgets and stricter industry guidelines, travel costs for all family members are becoming more difficult. We are currently working hard to make this program as affordable as possible. The average per person cost for camp are:

• Transportation: air and ground - $1,400

• Meals and lodging - $775

CHES Foundation is committed to continuing this valuable program with your help. Would your family consider making a tax- deductible donation to help cover travel costs for your family to attend. Think you can help? Please email us directly at info@ches.education

• $200 - Half of ground transportation costs for my family

• $400 - Ground transportation costs for my family

• $500 - Half of a plane ticket for One Person

• $1000 -One plane ticket for One Person

We thank you in advance for your assistance in maintaining the continuation of this valuable program.

PROGRAM REIMBURSEMENT GUIDELINES

Updated 3/30/2023

CHES will provide reimbursement for some travel-related expenses incurred while you are traveling to/from a program within the designated dates.

NOTE: Funding options and opportunities are changing due to pharma guidelines and market shifts. This can affect each program in many ways, but especially how and if travel-related expenses are covered.

Reimbursable Expenses Include:

• Flying

  • Parking at the airport OR arranged ground transportation to your home airport such as an Uber, Lyft or taxi.

    • Limitations:

      • 1 vehicle per party if you are parking at your home airport

      • Any parking charges that occur outside of the program dates will NOT be reimbursed

  • Checked bags fees

    • Parties of 2 persons or more

      • Two bag maximum

      • If anyone in your household is attending the same program, you are considered to be in the same party and subject to the 2 bag max.

    • Parties of 1 (traveling alone)

      • One bag maximum

    • Overweight bag fees not covered

  • Ground transportation between the airport and the program site

• Driving

  • Mileage at the rate of $0.67/mile (per the IRS) between your home and program site

  • Tolls and bridge fees

  • Hotel parking (limit - 1 vehicle per party)

  • $20/person per every 200 miles driven

  Note: ORIGINAL ITEMIZED RECEIPTS MUST BE PROVIDED WITH YOUR REIMBURSEMENT FORM AND PROGRAM EVALUATION SHEET REQUIREMENTS MUST BE SATISFIED.

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Non-Reimbursable Expenses:

• For those flying

  • Mileage between your home and the airport

  • Airport parking prior to or proceeding the program dates

  • Food while traveling between your home and the program. (TSA will allow dry foods and snacks through security.)

• For those driving

  • Parking at the program site for more than one vehicle, or for days outside of the program date

  • Certain food items such as candy, gum, and alcohol

• All Travelers (non-specific to flying or driving)

  • Hotel room charges and incidentals prior to or proceeding the program dates

  • Non-itemized receipts that include the total and not a list of goods that specify what was purchased

  • Certain food items such as candy, gum, and alcohol

FAQs - VIRTUAL FORMAT

Who can attend?

Each program is created for specific diagnosis’ and varies from strict guidelines limiting availability to patients while others may allow for caregivers, family members, and more. Please see details for admission for each program by visiting the program pages.

Select programs offer a hybrid virtual option, which create little to no additional costs to facilitate. For such instances, participants residing outside of the U.S. may also be welcome to join us. Some restrictions may apply. CHES Foundation cannot guarantee free shipping of collaterals, brochures, giveaways, or any other items regularly provided for the conference to non-U.S. residents.

How long do your programs run?

Each meeting will slightly vary, but will last 45-90 minutes unless otherwise stated.

What is the format? And what do I need to participate?

In light of safety precautions set in 2020, select programs will offer a virtual option using the Zoom platform. Participants can connect using the equipment described below as well as the downloadable app, called Zoom. If you prefer not to download the app, connectivity is also available through a web browser on Zoom.us.

Participants should have equipment to meet the technological needs of the program, such as a viewing device (like a desktop computer, laptop, WiFi enabled tablet, or a smartphone), a microphone and camera (if your viewing device is not equipped with one), and an internet connection with minimal speeds of 1.5 Mbps (both up and down.)  There are multiple free websites to check your internet speed.  One example is SpeedTest.net.

How much does it cost to attend?

Virtual programs are entirely free. You should not feel pressured, but donations are greatly appreciated. Funding is drastically changing for programming, so if you are willing and able, any donated amount would be set aside to help preserve the future of our programs.

Attendees outside of the U.S. may be subject to long-distance phone charges if they choose to dial-in by phone rather than connect via internet connection through the Zoom platform.

What about patient confidentiality?

Information that you share or hear will be treated with the utmost respect and never disclosed without your permission.  We want participants to feel comfortable so that we may support one another. All participants 18 and older are required to electronically sign a confidentiality agreement. See complete confidentiality agreement.

How does CHES Foundation fund programming?

CHES competes rigorously for grants provided by manufacturers to support educational programming. We are a 501(c)3 who strives to fill the gaps within patient communities through education, conference scholarships, financial assistance, and more.

Are your education teachings and sources credible?

We use hand-picked medical professionals for any clinically-related topics that may be covered.  We ensure that all of our presenters are certifiable experts on the topics they present on, so you can have real, productive conversations with your doctor about treatment and health options.

Are we missing your question?

Email us at info@ches.foundation. Chances are - if you have a question, someone else has that same one. Let us know so we can add it to our list.