PROGRAM CANCELLATION POLICY

Updated 2/9/2026

In years past, CHES waived registration costs for select programs and then moved to refundable deposits. These fees were put in place to combat the loss of funds that occur when participants/families canceled. At this time with the reduction in our current funding climate, we are no longer able to provide refundable deposits and must implement registration fees.

• All Event Registration fees: $25/person with a cap of $100 for families over 4+ persons

CHES Foundation is committed to continuing these valuable programs with your help. Would your family consider making a tax- deductible donation to help cover travel costs for your family to attend. Think you can help? Please email us directly at info@ches.education

We thank you in advance for your assistance in maintaining the continuation of these valuable programs.

PROGRAM ATTENDANCE POLICY - Updated 1/4/2025

Everyone who attends a CHES event, regardless of role (staff, attendee, industry, speaker, etc.) must be engaged and active in the learning process. If you register for an event and do not attend, or attend the event and skip the sessions, not only do you miss out on educational content but you also are taking the place of someone else who could have benefited from CHES's education. If you skip educational sessions, your eligibility for attendance at future events WILL be impacted. Your reimbursement expense report will be impacted or refused all together if you do not participate or skip mandatory activities and sessions.  Attendance at CHES events implies an active participation in creating a safe and inclusive space for everyone. The CHES Code of Conduct is outlined in the application for each event.

PROGRAM REIMBURSEMENT GUIDELINES

Updated 2/9/2026

CHES will provide reimbursement for some travel-related expenses incurred while you are traveling to/from a program within the designated dates.

NOTE: Funding options and opportunities are changing due to pharma guidelines and market shifts. This can affect each program in many ways, but especially how and if travel-related expenses are covered.

Reimbursable Expenses Include:

• Flying

  • Parking at the airport OR arranged ground transportation to your home airport such as an Uber, Lyft or taxi.

    • Limitations:

      • 1 vehicle per party if you are parking at your home airport

      • Any parking charges that occur outside of the program dates will NOT be reimbursed

  • Checked bags fees ( After the Shock - Inhibitor Camp ONLY)

    • Overweight bag fees not covered

    • 2 Bag Limit per family

  • Ground transportation between the airport and the program site if an airport shuttle is not available

• Driving

  • Mileage at the rate of $0.725/mile (per the IRS) between your home and program site

  • Hotel parking (limit - 1 vehicle per party)

  • $20 for a meal/person per every 200 miles driven

  Note: ORIGINAL ITEMIZED RECEIPTS MUST BE PROVIDED WITH YOUR REIMBURSEMENT FORM AND PROGRAM EVALUATION SHEET REQUIREMENTS MUST BE SATISFIED.

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Non-Reimbursable Expenses:

• For those flying

  • Mileage between your home and the airport

  • Airport parking prior to or proceeding the program dates

  • Food while traveling between your home and the program. (TSA will allow dry foods and snacks through security.)

• For those driving

  • Parking at the program site for more than one vehicle, or for days outside of the program date

  • Certain food items such as candy, gum, and alcohol

• All Travelers (non-specific to flying or driving)

  • Hotel room charges and incidentals prior to or proceeding the program dates

  • Non-itemized receipts that include the total and not a list of goods that specify what was purchased

  • Certain food items such as candy, gum, and alcohol

FAQs - VIRTUAL FORMAT

Who can attend?

Each program is created for specific diagnosis’ and varies from strict guidelines limiting availability to patients while others may allow for caregivers, family members, and more. Please see details for admission for each program by visiting the program pages.

Select programs offer a hybrid virtual option, which create little to no additional costs to facilitate. For such instances, participants residing outside of the U.S. may also be welcome to join us. Some restrictions may apply. CHES Foundation cannot guarantee free shipping of collaterals, brochures, giveaways, or any other items regularly provided for the conference to non-U.S. residents.

How long do your programs run?

Each meeting will slightly vary, but will last 45-90 minutes unless otherwise stated.

What is the format? And what do I need to participate?

In light of safety precautions set in 2020, select programs will offer a virtual option using the Zoom platform. Participants can connect using the equipment described below as well as the downloadable app, called Zoom. If you prefer not to download the app, connectivity is also available through a web browser on Zoom.us.

Participants should have equipment to meet the technological needs of the program, such as a viewing device (like a desktop computer, laptop, WiFi enabled tablet, or a smartphone), a microphone and camera (if your viewing device is not equipped with one), and an internet connection with minimal speeds of 1.5 Mbps (both up and down.)  There are multiple free websites to check your internet speed.  One example is SpeedTest.net.

How much does it cost to attend?

Virtual programs are entirely free. You should not feel pressured, but donations are greatly appreciated. Funding is drastically changing for programming, so if you are willing and able, any donated amount would be set aside to help preserve the future of our programs.

Attendees outside of the U.S. may be subject to long-distance phone charges if they choose to dial-in by phone rather than connect via internet connection through the Zoom platform.

What about patient confidentiality?

Information that you share or hear will be treated with the utmost respect and never disclosed without your permission.  We want participants to feel comfortable so that we may support one another. All participants 18 and older are required to electronically sign a confidentiality agreement. See complete confidentiality agreement.

How does CHES Foundation fund programming?

CHES competes rigorously for grants provided by manufacturers to support educational programming. We are a 501(c)3 who strives to fill the gaps within patient communities through education, conference scholarships, financial assistance, and more.

Are your education teachings and sources credible?

We use hand-picked medical professionals for any clinically-related topics that may be covered.  We ensure that all of our presenters are certifiable experts on the topics they present on, so you can have real, productive conversations with your doctor about treatment and health options.

Are we missing your question?

Email us at info@ches.foundation. Chances are - if you have a question, someone else has that same one. Let us know so we can add it to our list.

 Privacy Policy Notice

The following notice can be provided for data subjects (those who we obtain PI on) per his/her request for an explanation of how their data will be used, the lawful basis for processing and informing individuals of their rights under Data Protection Regulations.

All and any of your personal data collected can/will be used to:

1. Provide relevant information including patient education programs, data research opportunities, available treatment options specific to your (your child’s) health

2. Coordination of travel to/from in-person events with necessary 3rd party travel agents

3. Verification of data (including diagnosis-specific info) with provided medical providers

View our SMS Terms

Some PI may be shared internationally with 3rd party vendors to satisfy the needs for any of the above.  We take your privacy very seriously.  Safeguards have been established and are practiced to ensure the safety of your PI to the best of our ability in respect to the GDPR which is considered safe practices to the EEA (European Economic Area).