As individuals personally impacted by an inhibitor, CHES stands out as a subject matter expert. Since 2010, we have developed the most educational programs specific to the inhibitor community in the form of: Inhibitor Family Camp, Leverage, Momentum, After the Shock and now MUM (Mom’s Uninhibited Meeting.) In addition, CHES is the creator of the only worldwide publication, LifeLines for Health, designed for the topics those with an inhibitor need. From our programs, publications, speaking engagements and representation as a patient member at NIH, you can count on CHES to intimately understand your needs.
MUM empowers mothers of children with a bleeding disorder and an active inhibitor. The program’s goal is to assist women to find their voice when it comes to decision making about the health of their loved ones.
CHES will provide education about medical developments, advocacy skill building, stress management techniques and more to enable moms to make empowered decisions for their child, their families and themselves.
Thursday, July 18th - Friday, 19th, 2019
309 W. San Francisco, Santa Fe, NM 87501
2019 Registration: OPEN
Closes Tuesday, June 14th, 2019 (11:59p, ET)
Applicants must pre-register for screening purposes before completing the primary registration requirements. Acceptance to attend will be determined by CHES as we have many variables to consider. Preference will be given to first-time attendees.
We can send you reminders when new information is released about Mom’s Uninhibited, such as dates, locations, and the start of open registration.
Complete your communications profile to choose what you want to keep up on.
*If you’ve completed the notification sign-up form in the past, it is not necessary to fill it out again. We keep your information to use each and every year! If your information has changed, please complete this form once again.
FOUNDING DIAMOND SPONSOR
Who can attend?
Mom’s Uninhibited is available for women 18 and older who are mothers of children with hemophilia and an active inhibitor to factor products. U.S. residents only.
How much does it cost to attend?
There are no costs associated with attending once the trip is completed. Because of numerous, last-minute cancellations, we will be enforcing fully refundable deposits for those who attend the program. Deposits will be set at $50/person. Travel related expenses including tolls, mileage and parking will still be reimbursed. Air transportation will be arranged for you. All meals will be provided on site. Learn more on our policies and guidelines page.
Will child care be available?
Due to limited funding, childcare will NOT be provided at this time.
How does CHES fund programming?
CHES competes rigorously for grants and sponsorship opportunities provided by manufacturers to support educational programming. We are an independent chronic disorder education company, unaffiliated with any one entity that provides products to the communities we serve.
What about patient confidentiality?
Information that you share or hear will be treated with the utmost respect and never disclosed without your permission. We want participants to feel comfortable so that we may support one another.