HAPPENING AGAIN THIS YEAR: Factor 10 deficient (FXd) Session!

FX-tend Pre-Con

CHES is honored to partner with Kedrion at the One Drop Consortium for the FX-tend Post Con for individuals living with FX deficiency (an ultra-rare bleeding disorder.) The focus group will:

  • explore the difficulties in creating a community for Factor X patients

  • discuss how the disorder and lack of information affects quality of life

  • address the need for more genetic data in research to improve access to diagnosis, care and treatment

FX-tend Pre Con Friday, 11/13/26 Lunch will be provided for FX attendees that are participating in the Pre-Con Session and must come in earlier than usual to Tampa.