NEW THIS YEAR: Factor 10 deficient (FXd) Session!
FX-tend Post Con
CHES is honored to partner with Kedrion at the One Drop Consortium for the FX-tend Post Con for individuals living with FX deficiency (an ultra-rare bleeding disorder.) The focus group will:
explore the difficulties in creating a community for Factor X patients
discuss how the disorder and lack of information affects quality of life
address the need for more genetic data in research to improve access to diagnosis, care and treatment
Virtual attendance is still open for the FX-tend Post Con Sunday, 11/16/25 from 1:00-2:15pm ET. Interested? Register below for One Drop before it’s too late.
