Lifelines for Health Digital Digest is an opportunity to share the latest updates for the bleeding disorder community. The articles selected align with CHES's mission: We inspire self-awareness and self-reliance in individuals with chronic health conditions, their families, and their communities. We empower them to engage with their treatment, to live life to its fullest, and, in turn, to inspire others.
The new format aims for a cleaner look and an easy way to share these critical links, increased awareness about all bleeding disorders, and increased education.
We look forward to hearing your feedback. Thank you for being a part of the CHES community.
Best,
Heather Case, Director of Advocacy and Outreach and the whole CHES team
This weeks key stories:
Women
Providing women with the resources they need for the healthcare they deserve is central to CHES's mission. Check out this recent announcement about Dr. James's work and listen to a mother daughter duo share the story of their lived experiences.
https://healthsci.queensu.ca/stories/news-announcements/queens-health-sciences-researchers-awarded-more-35-million-recent-cihr
https://open.spotify.com/episode/38rPifMjpGX1pmdmbLQfDW
Myeloproliferative Neoplasms
Read about a novel and simple technique for detecting and diagnosing myeloproliferative neoplasms (MPN). Complications like thrombosis and bleeding can develop from the abnormal growth of blood cells caused by MPN.
https://www.azooptics.com/News.aspx?newsID=28874
Study Updates
The below links provide study updates on emerging technologies affecting the bleeding disorder community.
https://www.medpagetoday.com/hematologyoncology/hemophilia/111130
https://www.cgtlive.com/view/miao-potential-ultrasound-mediated-gene-delivery
https://www.ajmc.com/view/hemophilia-a-gene-therapy-superior-to-standard-of-care-in-phase-3-trial
Medical Trauma
The long-term and current impact of the tainted blood crisis in the bleeding disorder community is still on people's minds.
https://hemophilianewstoday.com/columns/addressing-medical-trauma-hemophilia-community/
Other
Blood thinners and market share are two areas receiving some attention in the community this week.
https://www.health.com/natural-blood-thinners-8655856
https://www.openpr.com/news/3597189/bleeding-disorder-treatment-market-share-to-reach
Check out our Library of resources for women with bleeding disorders!
