Bleeding Disorder News # 113: Glue Crew, Giving Tuesday and Save the Dates for 2026

Campaign URL Copy

• Twitter 0 tweets

• Subscribe
• Past Issues
• RSS
• Translate
  • English
  • العربية
  • Afrikaans
  • беларуская мова
  • български
  • català
  • 中文（简体）
  • 中文（繁體）
  • Hrvatski
  • Česky
  • Dansk
  • eesti keel
  • Nederlands
  • Suomi
  • Français
  • Deutsch
  • Ελληνική
  • हिन्दी
  • Magyar
  • Gaeilge
  • Indonesia
  • íslenska
  • Italiano
  • 日本語
  • ភាសាខ្មែរ
  • 한국어
  • македонски јазик
  • بهاس ملايو
  • Malti
  • Norsk
  • Polski
  • Português
  • Português - Portugal
  • Română
  • Русский
  • Español
  • Kiswahili
  • Svenska
  • עברית
  • Lietuvių
  • latviešu
  • slovenčina
  • slovenščina
  • српски
  • தமிழ்
  • ภาษาไทย
  • Türkçe
  • Filipino
  • украї́нська
  • Tiếng Việt

Bleeding? That's what we do!

The end of 2025 is quickly approaching. My hope for 2026 is that we can show up for each other in honest ways. Join a Glue Crew.   What's a Glue Crew? I am so glad you asked. The Glue Crew is what I call the volunteers who keep CHES events moving forward as staff are running around doing all the other critical pieces that happen behind the scenes. Your Glue Crew might be the hemohana that shows up with activities for your child(ren) to distract when a sibling is in the hospital with a bleed. Your Glue Crew may create a meal train for a seasoned member of the community who is recovering from an ankle surgery and needs help with daily meals. Your Glue Crew may be the group that offers moral support and late night bat signals that something is wrong and they just need another hemomom to call and verify said issue. The details of your Glue Crew aren't as important as the Showing Up for Each Other. Happy December! Be kind to each other, Heather SAVE THE DATES! - CHES 2026 IN PERSON EVENTS! CHES is the only national non-profit in the bleeding disorder space whose mission continuously offers meaningful, instructive, and consistent education for the ultra-rare community since 2012. We are thrilled to announce our 2026 dates! One Drop: Tampa, FL- February 27-March 1, 2026 (postponed from November 2025) LadyBugs National Women's Conference: Colonial Williamsburg, VA- April 24-26, 2026 in partnership with the Virginia Hemophilia Foundation After the Shock Inhibitor Family Camp: Camp Zeke, June 19-21, 2026 InhibitCon: New Orleans, LA, September 10-13, 2026 *First day is Leverage in partnership with GutMonkey OneDrop 2026: Tampa, FL, November 6-8, 2026   CHES News  Stay tuned here, and on our social media channels (Facebook, Instagram), and LinkedIn for updates on applications opening for our 2026 opportunities. As always, CHES is grateful to our funders and community for the support! Please continue to spread the word about CHES. We welcome new individuals and families and remain true to our 3 pillars:   Inhibitor Community - Ultra-Rares  - Women   Save the Date Postcards will be arriving in mailboxes in January 2026. Have you moved? Changed your contact information? Please update here. Giving Tuesday was celebrated on December 2nd but it's not too late to act! Giving Tuesday is recognized globally as a day that encourages people to do good. Every act of generosity counts! If you cannot afford to DONATE to CHES, consider checking on an elderly neighbor, sending a thank you note to your hematology team, dropping off cookies at your local fire department. Women Self administered Bleeding Assessment Tool or Self-BAT https://www.hematologyadvisor.com/news/hemophilia-self-bat-carriers-bleeding-disorders-treatment-risk/ Heavy Menstrual Bleeding device shows promise https://www.linkedin.com/posts/femtechinsider_spark-biomedical-publishes-study-showing-activity-7396498987882639360-2E7_?utm_medium=ios_app&rcm=ACoAAAQwDakB4Iq0FRu3QoozOUhbCOVyPMBDKn0&utm_source=social_share_send&utm_campaign=mail Abnormal Uterine Bleeding https://www.nature.com/articles/s41598-025-26669-8 Barriers and Solutions: A Call to Action for Women's Health https://www.thelancet.com/journals/lana/article/PIIS2667-193X%2825%2900047-X/fulltext?j=63908&sfmc_sub=15681063&l=1576_HTML&u=4351058&mid=546014653&jb=181&utm_source=sfmc&utm_medium=email Hemophilia Measured risks  https://hemophilianewstoday.com/columns/parents-rebuffing-ideas-shrink-childs-life-hemophilia/ Pain is universal across all bleeding disorders https://www.jthjournal.org/article/S1538-7836(25)00715-9/fulltext Bits and Bobs Neonatal bleeding and inflammation https://bioengineer.org/platelet-transfusions-impact-neonatal-bleeding-and-inflammation/ Glow pills for GI Health https://scitechdaily.com/a-glow-in-the-gut-pill-could-make-colonoscopies-optional/ Hermanas de Sangre te invita a participar en una sesión educativa el 15 de diciembre a las 8 PM (hora del este), 5 PM (hora del oeste) donde tendremos a Carolina Castillo, LPC.  Ella nos dará una sesión donde aprenderemos a manejar nuestro bienestar emocional en medio del actual clima político y migratorio. CHES quiere aportar una herramienta y un espacio para platicar de forma segura.  Hermanas de Sangre Campaign — CHES Foundation | Rare Bleeding Disorders That's a wrap on CHES Events 2025! THANK YOU to each person who attended, supported, volunteered, spoke, and shared their experience and humor with the CHES community! Check out our Library of resources for women with bleeding disorders!   Supported by an educational grant from Takeda Pharmaceuticals America, Inc Did you know CHES is now a 501(c)3? Since 2015, nSpiration Foundation has collaborated with CHES to further its mission to serve those with bleeding disorders and other chronic conditions. Effective 01/01/2023 nSpiration and CHES have merged to remain a non-profit committed to serving the needs of the community. Want to aid CHES Foundation in future endeavors? Support CHES Foundation to maintain its critical programs by donating. With your help, we can:   Sustain and grow our unique events Continue educational programs and informative communications Tailor resources specifically for the bleeding disorders community Consider making a monthly re-occuring contribution, even $5 would make a huge difference!  Click the button below and give today. Click Here to Donate Older PostBleeding Disorder News # 112: One Drop Pivot, 2026 Events and Giving Tuesday Recent Back to News Back to Top Clinical Trials Find clinical trials in your area. CHES is not responsible for claims, info, or advice given on this site. Notifications Sign up for your favorite events. Receive periodic info on programs including dates, locations, and open registration. Or update your preferences if you've already signed up for notifications. CHES Foundation, Inc. nSpiration Through Education 84 Beach Street, Middleboro MA 02346 Ph: 781.878.8561