Lifelines for Health Digital Digest is an opportunity to share the latest updates for the bleeding disorder community. The articles selected align with CHES's mission: We inspire self-awareness and self-reliance in individuals with chronic health conditions, their families, and their communities. We empower them to engage with their treatment, to live life to its fullest, and, in turn, to inspire others.
This is week 2 of the new format! We hope you use this newsletter to share critical links, increase awareness about all bleeding disorders, and increase education.
Thank you for being a part of the CHES community!
Happy Friday!
Heather Case, Director of Advocacy and Outreach and the whole CHES team
This weeks key stories:
Women
Providing women with the resources they need for the healthcare they deserve is central to CHES's mission. This is a critical article about postmenopausal bleeding.
https://www.news-medical.net/news/20240801/Study-Many-women-unaware-postmenopausal-bleeding-signals-endometrial-cancer.aspx
Thrombocytopenia Assessment
The role of platelets in thrombocytopenia evaluations is addressed in this article.
https://www.cureus.com/articles/252835-the-significance-of-platelet-indices-in-the-evaluation-of-thrombocytopenia#!/
Epistaxis (aka Nosebleeds!)
Check out this article - in the mainstream media no less (!)- about Nosebleeds 101
https://www.msn.com/en-us/health/medical/what-to-know-about-frequent-nosebleeds/ar-AA1mSsh9?ocid=msedgntp&pc=ACTS&cvid=ac33883ee34a43628f33d54fdf30c9cc&ei=4
Read about growth in the epistaxis device market here.
https://www.openpr.com/news/3603335/epistaxis-device-market-will-grow-over-cagr-5-88-between-2023
Von Willebrand
The topic of vWD often is underaddressed in the bleeding disorder space. This article provides insights.
https://www.cureus.com/articles/279164-thrombocytopenia-and-bleeding-in-chronic-kidney-disease-a-case-of-acquired-von-willebrand-syndrome#!/
Updates on our international blood brothers and sisters
The below links provide updates in our international bleeding disorder community.
Hemophilia Awareness in Namibia
https://economist.com.na/90070/health/brining-awareness-to-the-rare-disorder-that-is-haemophilia/
An anniversary and a factor shortage in Iran
https://iranfocus.com/general/51707-14000-hemophilia-patients-in-iran-facing-medication-shortages/
https://www.tehrantimes.com/news/501762/IBTO-s-achievements-at-global-level
Other: Inhibitors and CRISPR information
Inhibitor risk management and CRISPR are two areas receiving some attention in the community this week.
https://www.hindustantimes.com/lifestyle/health/haemophilia-care-heres-how-benefits-and-risks-related-to-treatment-of-haemophilia-can-be-balanced-101722761221875.html
https://www.forbes.com/sites/regeneron/2024/08/05/exploring-the-life-changing-promise-of-genetic-medicines-in-blood-disorders/
Check out our Library of resources for women with bleeding disorders!
