Established as a modified version of CHES’ Inhibitor Family Camp since 2010, this new and improved program provides parents and caregivers of children with hemophilia and inhibitors the support they truly need.

We understand at a personal level the obstacles and challenges that coincide with raising a child with inhibitors. We strive to equip every parent with the tools to navigate his/her child through everything from hospital stays to home infusion.

This weekend program is packed full of education and support. We play, learn, and grow while we build stronger relationships.

DIAMOND AND LEGACY SPONSOR

GOLD SPONSOR

Friend Sponsors

CSL Behring

CVS Health

 

Scheduled: 

June 21–24, 2024 (Fri-Mon)

Camp Zeke
31 Barry Watson Way,
Lakewood, PA 18439

Registration:

Closed - May, 5/31/2024

Applicants must register below for screening purposes before completing the full registration requirements. Acceptance to attend will be determined by CHES as we have many variables to consider. Preference will be given to first-time attendees.

Reminders

We can send you reminders when new information is released about After the Shock, such as dates, locations, and the start of open registration.

Complete your communications profile to choose what you want to keep up on.

*If you’ve completed the notification sign-up form in the past, it is not necessary to fill it out again. We protect your information from program to program, each year.  If your information has changed, please complete this form once again.

For questions on who can attend and more:
View the Frequently Asked Questions below  -  Email us at info@ches.education  -  Call (781) 878-8561

Camp Zeke

  • Sits on 560 wooded acres in the foothills of the Pocono Mountains

  • Has a private, spring-fed lake

  • Beautiful, air-conditioned cabins

  • Most cabins have a lake-view lounge for socializing with friends, participating in group activities, and winding down energy-filled days

  • Beautiful paved walkways connect buildings, café, and program areas

  • Amenities include a full theater, nature trails, a private lake, 3 professional teaching kitchens, a heated outdoor pool, lounge, dance/yoga studio, a pavilion, 3 art studios, and much more

What to Expect

Fly into a designated airport in the late afternoon/early evening. Transportation will be provided from the airport to the camp.  Dinner and fun the first evening as we settle in and get to know each other.

The following two days will consist of educational sessions, that will include topics like Emotional Effects of Chronic Illness, Treatment of Inhibitors and Yoga for Relaxation. Rap sessions and included teen sessions are offered throughout the weekend. Through these sessions, we facilitate participant learning and self-confidence, establishment of coping mechanisms, and experience peer-to-peer connections to build strong support systems.

The final morning, we have breakfast, closing meeting and sad, sometimes tearful good-byes as we prepare for departure home.

FAQs

Who can attend?
Children living with hemophilia and an inhibitor are encouraged to attend with up to two parents/guardians and immediate family members (in the same household) if they satisfy the following qualifiers.

  • Is between the ages of 0-18.

  • Lives with an active inhibitor that has not successfully tolerized. Since inhibitors have been known to return after just weeks, months, or years after tolerization, children who have had a successful immune tolerance experience within the past 3 years or less will also be welcomed to attend.  Those who have tolerized for more than three years ago will be welcomed, as space allows.

  • Campers are encouraged to attend regardless of treatment product used.

Will the location be accessible to wheelchairs and other mobility devices?
Absolutely!

How much does it cost to attend?
In the past, there have been no costs associated with attending After the Shock.  Travel related expenses including tolls, mileage and parking were reimbursed, and air transportation was arranged for participants.

With tighter budgets and stricter industry guidelines, air travel costs for participants is becoming more difficult to cover.  While the situation looks positive, we cannot yet disclose the actual cost for families, if any, of this program.  But we are currently working hard to make this program as affordable as possible. If you wish to attend, we strongly urge you to register ASAP for the best financially affordable outcome. You may cancel at a later time if any required costs are not conducive to your financial reach.

We do require a fully-refundable deposit to be completed before booking travel. This was put in place to combat lost funds from cancellations or no-shows after flights have been purchased. The deposit is $25/per person with a max of $100 per family. This deposit will be returned after attendance of the event has been concluded.


For more info about our grant coverage, please view our policies and guidelines.

Will there be medical coverage?
We will have a highly skilled nurse with multiple years of experience familiar with managing hemophilia with an inhibitor on duty all weekend. The SUNY Upstate Medical University is the nearest HTC within a 2 hour drive.  The nearest hospital is Wayne Memorial about 30-40 minutes away.

Will child care be available?
Childcare will be available all weekend so that parents may attend sessions. It is recommended that children under the age of 4 stay with a parent except during adult scheduled sessions.

Will industry be present?
In years past, camp has been an industry free zone. In light of continued funding restrictions, there may be limited industry participation on site throughout the weekend.

Are your education teachings and sources credible?
We use hand-picked medical professionals for any clinically-related topics that may be covered.  We ensure that all of our presenters are certifiable experts on the topics they present on, so you can have real, productive conversations with your doctor about treatment and health options.