Comprehensive Health Education Services (CHES) founded and created this brand new program to provide parents and caregivers of newly diagnosed children with hemophilia and inhibitors the support they truly need.
CHES understands at a personal level the obstacles and challenges that coincide with raising a child with inhibitors. We strive to equip every new parent with the tools to navigate his/her child through everything from hospital stays to home infusion.
This weekend program is packed full of education and support. We play, learn, and grow while we build stronger relationships.
Sits on 560 wooded acres in the foothills of the Pocono Mountains
Has a private, spring-fed lake
Beautiful, air-conditioned cabins
Most cabins have a lake-view lounge for socializing with friends, participating in group activities, and winding down energy-filled days
Beautiful paved walkways connect buildings, café, and program areas
Amenities include a full theater, nature trails, a private lake, 3 professional teaching kitchens, a heated outdoor pool, lounge, dance/yoga studio, a pavilion, 3 art studios, and much more
Friday, June 21st – Monday, the 24th, 2019
31 Barry Watson Way,
Lakewood, PA 18439
Applicants must pre-register for screening purposes before completing the primary registration requirements. Acceptance to attend will be determined by CHES as we have many variables to consider. Preference will be given to first-time attendees.
We can send you reminders when new information is released about After the Shock, such as dates, locations, and the start of open registration.
Complete your communications profile to choose what you want to keep up on.
*If you’ve completed the notification sign-up form in the past, it is not necessary to fill it out again. We keep your information to use each and every year! If your information has changed, please complete this form once again.
For questions on who can attend and more:
View the Frequently Asked Questions below - Email us at email@example.com - Call (781) 878-8561
What to Expect
Fly into a designated airport in the late afternoon/early evening. Transportation will be provided from the airport to the camp. Dinner and fun the first evening as we settle in and get to know each other.
The following two days will consist of educational sessions, including The Bio-psychosocial Effects of Chronic Illness, Treatment of Inhibitors, Aqua Therapy, and Yoga for Relaxation. Rap sessions, separate teen tracks and sessions for siblings, and the affected child are offered throughout the weekend. Through these sessions, we facilitate participant learning and self-confidence, establishment of coping mechanisms, and experience peer-to-peer connections to build strong support systems.
The final morning, we have breakfast, closing meeting and sad, sometimes tearful good-byes as we prepare for departure home.
Who can attend?
Children ages 0-18 living with an active inhibitor that have not successfully tolerized and their immediate families are encouraged to attend. Because inhibitors have been known to return after just weeks, months, or years after tolerization, children who have had a successful immune tolerance experience within the past 3 years or less will also be welcomed to attend. Those who have tolerized more than three years ago will be welcomed, as space allows.
Will the location be accessible to wheelchairs and other mobility devices?
How much does it cost to attend?
There are no costs associated with attending once the trip is completed. Because of numerous, last-minute cancellations, we will be enforcing fully refundable deposits for those who attend the program. Deposits will be set at $25/person, not to exceed $100/family. Travel related expenses including tolls, mileage and parking will still be reimbursed. Air transportation will be arranged for you. All meals will be provided on site. Learn more on our policies and guidelines page.
Will there be industry representation?
This program has a strict, industry-free, solicitation-free policy; therefore, no representatives from pharma, specialty pharmacies, or any other sponsoring organizations will be present.
Will there be medical coverage?
We will have a highly skilled nurse with multiple years of experience familiar with managing hemophilia with an inhibitor on duty all weekend. The SUNY Upstate Medical University is the nearest HTC within a 2 hour drive. The nearest hospital is Wayne Memorial about 30-40 minutes away.
Will child care be available?
Childcare will be available all weekend so that parents may attend sessions. It is recommended that children under the age of 4 stay with a parent except during adult scheduled sessions.
Are your education teachings and sources credible?
We use hand-picked medical professionals for any clinical-related topics that may be covered. We ensure that all of our presenters are certifiable experts on the topics they present on, so you can have real, productive conversations with your doctor about treatment and health options.