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InhibitCon

Purpose

CHES Foundation, Inc understands at a personal level the obstacles and challenges that coincide with living with an inhibitor as caregivers and adults. We live with inhibitors too. Our goal is to equip you with the tools necessary to thrive with an inhibitor diagnosis despite the many bumps in the road.

About InhibitCon

InhibitCon is a new CHES Foundation program with three distinct tracks designed for the inhibitor community: Caregiver, Adult Men and Tweens/Teens. The adult track will keep CHES’ long standing Momentum inhibitor program intact.  This weekend program is packed full of education and support.

InhibitCon is open to individuals with an active inhibitor age 12-17 with an adult caregiver and adults ages 18+.  It will offer topics critical to the inhibitor community such as treatment products (existing and in development), health insurance changes, mental health support, techniques for continued venous access health,  pain management and more.

DIAMOND SPONSOR

SILVER SPONSOR

Friend Sponsors

DrugCo Pharmacy

Octapharma

Who can attend?

InhibitCon is open to individuals with an inhibitor age 12-17 with an adult caregiver and adults ages 18+. U.S. residents only. More qualifications below:

UPDATED ATTENDANCE QUALIFICATIONS

One caregiver of a child affected by an inhibitor younger than 12.

Caregivers such as a parent/spouse or significant other for adult attendee’s that may not be entirely independent or need assistance with day to day life. One caregiver may also attend if the qualifying participant is unable to travel.

One adult attendee up to the age of 26 and one parent as it is common for individuals to remain on parents insurance up until the age of 26.

We understand that the impact inhibitors extends further than just the participant and we have heard your need for expanding these attendance factors.

My inhibitor has been tolerized more than 5 years ago - why can’t I attend?

InhibitCon is designed to create an adapted environment for those with inhibitors, while providing a place to connect with others with similar challenges. A myriad of educational programs are available for those in the hemophilia community not currently managing an active inhibitor.

Will there be medical coverage?
We will have two highly skilled nurses with multiple years of experience familiar with managing hemophilia with an inhibitor on duty all weekend. Both Gulf States and Texas Children’s HTCs are located on Fannin St in Houston 30 minutes from the airport hotel.

How much does it cost to attend?

There are little to no costs associated with attending once the trip is completed. Because of numerous, last-minute cancellations, a fully refundable $50/person deposit is required to attend the program.

Travel related expenses including tolls, mileage, and parking will be reimbursed, with limitations. Air transportation will be arranged for you.  Most meals will be provided on site. Learn more on our policies and guidelines page.

Will the location be accessible to wheelchairs and other mobility devices?

We ensure that every location we choose offers accessible accommodations and facilities in compliance with the American's With Disabilities Act. Accessible accommodations include entrances, rooms, meeting areas, and elevators. 

What should I bring?

Your factor/meds and supplies, as there will NOT be any on site. Also bring your enthusiasm and willingness to reach out so we can learn from each other!

What about patient confidentiality?

Information that you share or hear will be treated with the utmost respect and never disclosed without your permission. We want participants to feel comfortable so that we may support one another.

How does CHES fund programming?

CHES Foundation competes rigorously for grants provided by manufacturers to support educational programming. We are an independent chronic disorder education company, unaffiliated with any one entity that provides products to the communities we serve.