Bleeding Disorder News # 68: Gift of Music; Frugal Family; Pursue his Dreams

The gift of music provides my son a break from hemophilia
Hemophilia News Today
After witnessing her son's joy during a concert, columnist Cazandra Campos-MacDonald reflects on the gift of music in life with hemophilia.

Frugal Family Finds Invites Budget-Savvy Families to Sign Up for Exclusive Newsletter
FOX21 News Colorado
From budget-friendly tips and DIY hacks to money-saving strategies and fitness insights, Frugal Family Finds is committed to empowering parents and ...

By taking control of his health, my son is able to pursue his dreams
Hemophilia News Today
Julian's journey toward wholeness. As I reflected on the evening, I realized that I hadn't seen the boy who struggled with a bleeding disorder or the ...

What Is the Association between Hemoglobin Levels, Von Willebrand Factor-Antigen Activity?
Docwire News
“It is known that VWF initiates hemostasis under high-flow conditions.” Related: Is Desmopressin Safe In Women with Inherited Bleeding Disorders ...

Research adds to knowledge about heart disease and stroke in women of all ages
American Heart Association
In yet another study featured, researchers report that while the incidence of intracerebral hemorrhage (bleeding within the brain), the second most ...

YOUR HEALTH: Gene therapy redefines hemophilia treatment - WAFB
WAFB
Hemophilia, once a ...
Innovative Therapies for Acquired Hemophilia A - PubMed - PubMed
Marstacimab in Patients with Hemophilia A or B - CheckRare - CheckRare
YOUR HEALTH: Gene therapy redefines hemophilia treatment - YouTube - YouTube
Full Coverage

Dispelling myths about bleeding disorders, including hemophilia
Hemophilia News Today
In honor of Rare Disease Day, columnist Jennifer Lynne focuses on dispelling myths about hemophilia and setting the record straight.
Hemophilia & Thrombosis - Hawaii Pacific Health - Hawaii Pacific Health
Hemophilia Treatment - Stanford Medicine Children's Health - Stanford Medicine Children's Health
Navigating Medical Treatment for Hemophilia: A Comprehensive Guide - Hemophilia Outreach Center
Full Coverage

Advancements in Hemophilia A Therapies - American Journal of Managed Care
American Journal of Managed Care
Steven W. Pipe, MD, explores the latest developments in hemophilia A treatments and prophylactic therapies, including extended half-life agents ...

BioMarin preaches patience amid slow sales for hemophilia gene therapy | BioPharma Dive
BioPharma Dive
BioMarin Pharmaceutical is struggling to sell the first marketed gene therapy for the most common form of hemophilia, announcing on Thursday minimal ...
BioMarin preaches patience amid slow sales for hemophilia gene therapy | PharmaVoice - PharmaVoice
BioPharma Dive on X: "BioMarin preaches patience amid slow sales for hemophilia gene therapy ... - twitter.com
Full Coverage

Preventive therapy may lead to less joint damage in hemophilia patients
Hemophilia News Today
Importantly, though, such damage appeared to be less frequent for individuals on regular preventive treatment, regardless of the type of hemophilia ...
Current status of treatment and disease burden of a cohort of hemophilia B in China - PubMed
What are the benefits and risks of newer non-clotting factor therapies for the prevention ... - Cochrane - Cochrane
Efanesoctocog alfa in hemophilia A: a profile of its use | Drugs & Therapy Perspectives - SpringerLink
Full Coverage

Study finds muscle loss common in hemophilia A with joint bleeds
Hemophilia News Today
Sarcopenia may occur in as many as half of adults with severe hemophilia A who experience recurrent joint bleeds, a study finds.

Governments should pay the high price of gene therapy - Healthy Debate
Healthy Debate
Current treatment options for hemophilia are expensive and cost the government millions of dollars over the lifetime of a hemophiliac. Procurement ...

Improved quality of life and better health for people with haemophilia A - Pharmac
Pharmac
Haemophilia A is a hereditary life-long bleeding disorder caused by a deficiency of factor VIII, which impairs the body's ability to make blood clots.

'Please don't let them get away with it': Dying wish of Manchester victim of infected blood ...
Manchester Evening News
Sue Sparkes, 65, from Cardiff, said her husband, Les, who was a haemophiliac and infected with HIV and hepatitis C, died in 1990. "I was left widowed ...

Hemophilia-related events, activities set for Bleeding Disorders Awareness Month
Hemophilia News Today
... blood or bleeding disorders. ... The organization will also host its Adult Connection Symposium for men, women, and couples affected by bleeding ...

Where do we draw the line between advocacy efforts and complaints?
Hemophilia News Today
Within the bleeding disorders community, many remain underserved, including women ... hemophilia and other bleeding disorders, especially among women.

Carbon declares bleeding disorders month - Times News
Times News
The Pittston man was born with severe hemophilia, a blood clotting disorder, and takes an injectable medicine weekly in order for normal clotting to ...

ECU hosts event to raise awareness of bleeding disorders - YouTube
YouTube
East Carolina University and Brody School of Medicine held an event on Saturday to raise awareness of bleeding disorders.

My husband's efforts to understand the health issues of others - Hemophilia News Today
Hemophilia News Today
Where do we draw the line between advocacy efforts and complaints? Bleeding Disorders Awareness Month kicks off in March · By taking control of his ...