Bleeding Disorder News #70 - SHEmophilia Resources; Chandler Jackson; Where are the Patients?

This weeks key stories:

Fewer bleeds after switch to Jivi from Kovaltry, study finds - Hemophilia News Today

Hemophilia News Today
... haemophilia A ≥ 12 years followed in a Comprehensive Hemophilia Care Program in Canada,” was published in the journal Haemophilia. Recommended ...

Oregon lawmakers pass Rep. Levy bill aimed at trimming costs for life-saving prescription medicines
KTVZ
The Pacific Northwest Bleeding Disorders, an organization to enhance the quality of life for individuals with bleeding disorders, strongly advocated ...
 
Attending Washington Days reminds me that my voice matters - Hemophilia News Today
Hemophilia News Today
Many of those in the bleeding disorders community gather annually in Washington, D.C., to meet with U.S. representatives and senators. The goal is ...

Keep your blood money out of Ontario—why paid plasma donation is unethical
The Queen's Journal
... coagulation factors, which are used to treat various conditions, including immune deficiencies and bleeding disorders. Canada's plasma supply only ...

How I've handled several failures at feeling numb at the dentist - Hemophilia News Today
Hemophilia News Today
Jennifer hopes her column will raise awareness for hemophilia and other bleeding disorders, especially among women. Tags. dentist. Comments. Leave a ...

Novoeight safely and effectively treats, prevents bleeds long term - Hemophilia News Today
Hemophilia News Today
Used long term in the real world, Novoeight safely and effectively prevented and treated bleeding episodes in hemophilia A patients in Japan.
Effective treatment for hemophilia A with inhibitors. - NovoSeven® RT - NovoSeven® RT
Hemophilia Treatment Centers (HTCs) - Bleeding Disorders Alliance Illinois - Bleeding Disorders Alliance Illinois
Traveling with hemophilia B: Everything you need to know - Hemophilia News Today
Full Coverage

Challenges in haemophilia care in the Philippines - The Lancet Haematology
The Lancet
Haemophilia is a bleeding disorder that predisposes individuals affected, primarily males, to bleeding diathesis and spontaneous bleeding into ...

Adverse Pregnancy Outcomes More Common in Women With Inherited Bleeding Disorders
Hematology Advisor
Individuals were assigned to either of 2 groups based on the presence or absence of an inherited bleeding disorder, such as von Willebrand disease ( ...

Queen's University professor breaking ground on Hemophilia - Kingston | Globalnews.ca
Global News
Dr. David Lillicrap at Queen's University has been working for more than 20 years to eventually cure Hemophilia, an inherited bleeding disease.
What Is Hemophilia? (for Kids) - Aetna Better Health of Michigan (Medicaid) - Nemours KidsHealth
Hemophilia treatment is redefined by gene therapy - Ελληνική Εταιρεία Γονιδιακής Θεραπείας και Αναγεννητικής Ιατρικής
Queen's University professor breaking ground on Hemophilia | Pathology - Pathology and Molecular Medicine - Queen's University
Full Coverage

Switch to Efmoroctocog Alfa May Lower Bleeding Events in Hemophilia A - HCPLive
HCPLive
Patients in France with hemophilia A who switched their FVIII replacement treatment trended towards fewer bleeding events and articular ...

Real-World Insights: Factor vs Emicizumab in Hemophilia A
American Journal of Managed Care
Pipe delves into the real-world evidence surrounding factor replacement therapy and emicizumab in treating hemophilia A. With a robust clinical trial ...
Patient Functioning and Well-being, Economic, and Clinical Impact of Hemophilia A and Its Treatment - Stanford Medicine - Stanford University
HEMOPHILIA A AND B – Page 20 - Canadian Hemophilia Society -
Full Coverage
 
Are Bleeding Disorder Patients Getting the Most Out of Physical Therapy (PT)? - CSL
CSL
For those who live with bleeding disorders, joint problems can reduce their mobility and keep them from being active. When blood doesn't clot as it ...

ReciBioPharm and GeneVentiv Therapeutics partner to advance first AAV-based gene ...
Cision News
... haemophilia, and the first to treat haemophilia patients with inhibitors. On average 30 percent of people with haemophilia A and about 5 percent ...

When wheelchair use represents freedom, not confinement - Hemophilia News Today
Hemophilia News Today
Bleeding Disorders Awareness Month kicks off in March. But now, the painful part of Caeleb's mobility journey has resurfaced. In fact, his pain has ...

The Medical Specialty That's Key to Diagnosing von Willebrand Disease - CSL
CSL
Obstetrician-gynecologists can improve women's health by screening for bleeding disorders like von Willebrand Disease, which can cause heavy ...

Senator Addabbo champions legislation to enhance healthcare access for individuals with ...
QNS.com
Bleeding disorders prevent the blood cells in a person's body from clotting, causing a series of issues that include heavy bleeding from a small ...
 

Check out our Library of resources for women with bleeding disorders!