From Heather Case, Director of Advocacy and Outreach

Greetings,
CHES's annual women's event, LadyBugs, is happening next week in Salt Lake City! As you know from my Call to Action in our last edition, we had a truly impressive number of women who applied. And we had to waitlist over 2/3 of them due to funding restraints. The tremendous response to LadyBugs speaks directly to an unmet need- females in this community are craving to be SEEN, HEARD, AND CONNECTED. I know several of you did heed the call and reached out to your industry rep to talk about the vital importance and impact of CHES's education, connection, and community. THANK YOU. If you haven't had a chance to do so yet, please do. Not only for CHES events but for events at your own chapter, at other national organizations, in being SEEN and HEARD at every occasion. The issue of access to treatment and care for females is paramount. Help us lead the way to equity and access.

Heather Case
Director of Advocacy and Outreach

InhibitCon West
CHES is the only national non-profit in the bleeding disorder space whose mission continuously offers meaningful, instructive and engaging education for the inhibitor community.

We are excited for our 2nd InhibitCon of 2025! InhibitCon West will take place in Portland, Oregon on October 3-5, 2025. We also be hosting a pre-event Leverage program with Gut Monkey on Thursday, October 2nd. Leverage is open to adult males with an inhibitor. Applications will open on August 4th!

Women
Being seen and heard!
https://hemophilianewstoday.com/columns/how-new-doctor-made-me-feel-safe-woman-hemophilia/

New hemostasis gynecology clinic open at UC Davis
https://health.ucdavis.edu/medical-school/news/headlines/uc-davis-health-opens-hemostasis-gynecology-clinic-/2025/07

Sanofi supports "Dismissed", a film by Believe Limited about women and hemophilia
https://www.fiercepharma.com/marketing/sanofi-lends-support-dismissed-film-about-5-womens-experiences-hemophilia

Inhibitors
Pfizer's once weekly sub-C for patients with hem A or B shows promise
https://www.hematologyadvisor.com/news/hemophilia-marstacimab-efficacy-inhibitors-treatment-risk/

Gene Therapy
WHF article about the uptake of Gene Therapy
https://wfh.org/article/article-published-on-uptake-of-gene-therapy-in-hemophilia/?fbclid=IwQ0xDSwLrxL9leHRuA2FlbQIxMQABHk_SRpCgjJsBCXg7SEG6qovDh6f6GvsM0VtvGe7LfyMbPc8l3JxHT5QyYUtu_aem_6sVYiN_3li29P193Bo9qWg

Bits and Bobs
Hematology Advisor article on the disparties of opioid use disorder
https://www.hematologyadvisor.com/news/disparities-exist-in-outpatient-referrals-for-opioid-use-disorder/

Treatment delays at hospitals
https://hemophilianewstoday.com/columns/when-hospitals-arent-prepared-bleeding-disorders/

High risk bruising and bleeding disorder assessments at the ER
https://www.sciencedirect.com/science/article/abs/pii/S0145213425003527

By Females for Females BFFF
By Females for Females, BFFF, calls are open to any female or those who identify as a female who are 19 years+. We welcome the experience, knowledge and shared space that this group is fostering from females of all ages! To sign up for BFFF news and events, use this link.

Visite la página de Hermanas de Sangre para obtener más información sobre nuestra iniciativa para promover la autodefensa de aquellos que hablan español

**Hermanas de Sangre Campaign — CHES Foundation | Rare Bleeding Disorders**

CHES Events 2025 SAVE THE DATE!

InhibitCon East: April 4-6, Charlotte, NC - IN THE BOOKS!

After the Shock (Family Inhibitor Camp): June 20-23, Lakewood, PA IN THE BOOKS!

LadyBugs: August 8-10, Salt Lake City, UT (Open NOW) NEXT WEEK!

InhibitCon West: October 3-5, Portland, OR - REGISTRATION OPENS AUG 4!

OneDrop (Ultra-Rare Consortium): November 14-16, Tampa, FL

Applications for 2025 CHES Events open approximately 8 weeks ahead of event date. If you are interested in learning more about CHES's critical in person community educational events in 2025, please visit the CHES Website. Planning for our 2025 events is well underway and we are excited to share education, connections and community with you!