This week's key stories:
The Coalition for Hemophilia B has a multitude of scholarships resources on their page for the community
Including three scholarships provided by the Coalition for:
Students attending vocational, university, or graduate school
Students pursuing an interest in music and mental health
Young people with hemophilia ages 7-19 looking to explore golf as a sport!
Gene therapy dramatically cuts risk of bleeding in haemophilia B patients
Yahoo Movies Canada
Haemophilia is a rare condition that affects the blood's ability to clot.
Returning to daily life after celebrating milestones
Hemophilia News Today
In my son's case, hemophilia continues to make its presence known. Gone are the days when Caeleb suffered innumerable breakthrough internal bleeding ...
8-year-old golfer not letting rare condition define what he can do | Sports - The State Journal
The State Journal
The 8-year-old was diagnosed with hemophilia as a newborn but has not let the condition define him. He is currently ranked first in the state in ...
Viewpoint: Will the public be able to afford one-time gene therapy for hemophilia just ...
Genetic Literacy Project
Science may be advancing rapidly but as Crispr therapies start heading to the clinic the funding of research seems to increasing.
Be Bio's haemophilia B treatment obtains FDA orphan drug status
Pharmaceutical Technology
LOA and PTSR Model - Fidanacogene Elaparvovec in Hemophilia B (Fac... Premium Insights. The gold standard of business intelligence. Find out more.
Acquired Hemophilia Treatment Market to Boom at 6.8% CAGR, Reaching $30 Billion by ... - LinkedIn
Be Bio secures FDA Orphan Drug Designation for BE-101 - World Pharmaceutical Frontiers
Full Coverage
The reality of being both parent and caregiver to sons with hemophilia
Hemophilia News Today
But after my sons were born with severe hemophilia A with inhibitors, my husband and I quickly learned the basics of caregiving, by God's grace. Over ...
Panel recommends EU approve hemophilia gene therapy Durveqtix
Hemophilia News Today
A European Medicines Agency committee recommended EU conditional approval of gene therapy Durveqtix for adults with hemophilia B
Pharmacy Pushed Its Own Services On Workers, EEOC Says - Law360 Employment Authority
Law360
A pharmacy recruited workers who have hemophilia or family members with the condition and pressured them to let the company take over their ...
Takeda Tech Transfer Backs Brazilian Production of Hemophilia A Products | NAVLIN DAILY
NAVLIN DAILY
Brazil ranks fourth in the world in prevalence of Hemophilia, a rare condition impacting blood clotting. An estimated 12 thousand Brazilians deal with ...
DEBATE on hemophilia B gene therapy - YouTube
YouTube
In Episode 11 of our podcast series on hemophilia gene therapy, MATHIEU JACKSON, MURRAY MILNE, MARK PERVAN and ELIZABETH VANSANT, all with severe ...
Steven W. Pipe, MD, on Confirming Efficacy, Safety of Hemgenix Gene Therapy in ... - CGTLive®
CGTLive®
Etranacogene dezaparvovec (CSL Behring/uniQure), approved as Hemgenix for treating severe or moderately severe hemophilia B with or without ...
Hemlibra is best option among hemophilia A drugs by improving patients' quality of life ...
KBR
HJHS is an index that evaluates the joint health of hemophilia patients, and the more severe the joint damage, the higher the score. Professor Midori ...
The Last 50 years of Hemophilia Care: A Golden Era | Indian Pediatrics - SpringerLink - SpringerLink
Full Coverage
Alabama girl, 14, up for life changing baking award in national contest - WSFA
WSFA
Born with hemophilia, ...
Returning to daily life after celebrating milestones
Hemophilia News Today
I hope my son has learned the lessons he'll need to live a full life with a bleeding disorder. ... bleeding disorders. Tags. celebration, milestones ...
How to find the right hemophilia treatment center
Hemophilia News Today
Consider location when choosing a hemophilia treatment center, which offers a multidisciplinary approach to managing bleeding disorders.
Treating iron deficiency in women with hemophilia
Hemophilia News Today
Iron deficiency in women with bleeding disorders is a significant health issue that deserves attention, columnist Jennifer Lynne writes.
1Xtra DJ reveals grandad was infected blood victim - BBC
BBC
As were people like Kaylee's grandad, who had severe haemophilia - a rare condition where your blood doesn't clot properly. Kaylee Golding Kaylee ...
Check out our Library of resources for women with bleeding disorders!
