Happy Valentine's Day, all! It is my hope that this biweekly digest of news serves as a regular source of connection, education, and highlights. I hope you read it every other week and share it with your friends and colleagues! It's a biweekly labor of love from me to you!

The Digital Digest highlights an educational webinar/video in each edition! This edition features a video about OB/GYN for women with bleeding disorders, presented by Dr. Judy Simms-Cedan at last year's InhibitCon. To watch, click this link. You can gain access to all of CHES's recorded webinars at the footer of the CHES website.

Heather Case
Director of Advocacy and Outreach

Registration for InhibitCon East has opened!
CHES is the only national non-profit in the bleeding disorder space whose mission continuously offers meaningful, instructive and engaging education for the inhibitor community. Education at InhibitCon offers critical insights into the diagnosis and treatment of those with inhibitors, including the impact on mental health, pain management, and up-to-date advancements in the clinical space. There are three distinct tracks: Caregiver, Adult Men, Teens and Kids Visit https://ches.education/inhibitcon to learn more about InhibitCon. InhibitCon West will take place in Portland, OR, October 2-5 with a one day Leverage component to kick off the weekend.

Women
This article discusses Heavy Menstrual Bleeding and the importance of quality care. Co-written by an esteemed CHES Speaker, Dr. Jill Johnsen.
https://onlinelibrary.wiley.com/doi/epdf/10.1111/hae.14983

Tracking your menstrual cycle is a key opportunity for women to demonstrate irregular bleeding and have clear documentation for their provider. There are many paper based and digital options available. Be sure to play around to find the one that works for you!
https://www.thehindu.com/sci-tech/health/maintain-a-menstrual-diary-to-track-irregular-periods-experts/article69200197.ece

Young Adult Coalition
Bleeding disorders advocate, Shanthi Hegde, partnered with CHES to host a virtual event for young women last night. CHES was thrilled to have women's advocate, Jeanette Kizer-Jones, as a facilitator. My Bloody Valentine was an empowering event for women, girls, nonbinary, and those who identify as female. The evening included meaningful conversations surrounding life with a bleeding disorder, education about women who bleed, and a fun remote coloring activity. Sign up for the next one here https://bit.ly/4aAAr1A

Mental Health and Financial Resources
The PAN Foundation envisions a future where "equitable, accessible healthcare is a reality for all." Their financial assistance programs offer support to over 80 chronic conditions. Please check their site to see if the chronic condition(s) that affect you/your family has current funding and for instructions on how to apply.
https://www.panfoundation.org/find-disease-fund/

Glanzmann Thrombasthenia
This article includes updates on research about Glanzmann's Thrombasthenia and VWD.
https://hemab.com/#post-hemab-therapeutics-presents-interim-data-from-ongoing-phase-2-study-of-hmb-001-as-first-ever-prophylactic-treatment-in-glanzmann-thrombasthenia-and-preclinical-data-from-hmb-002-in-von-willebrand-dise

Pipeline reports for hemophilia
These articles provides info on products in the pipeline. Note, not all products make it to market and/or are available worldwide.
https://www.theglobeandmail.com/investing/markets/markets-news/GetNews/30812699/hemophilia-clinical-trials-and-studies-2025-ema-pdma-fda-approvals-mechanism-of-action-roa-nda-ind-and-companies-by-delveinsight/

https://hemophilianewstoday.com/news/antibody-therapy-mim8-seen-effective-hemophilia-a-children/

Pain relief
A new medication that is billed as non-addictive to address pain.
https://www.nytimes.com/2025/01/30/health/fda-journavx-suzetrigine-vertex-opioids.html

Applications for 2025 CHES Events open approximately 8-10 weeks ahead of event date. If you are interested in learning more about CHES's critical in person community educational events in 2025, please visit the CHES Website. Planning for our 2025 events is well underway and we are excited to share education, connections and community with you!