Bleeding Disorder News # 110: 2026 CHES Events are coming! GFM Fraud and Gene Therapy Update

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Bleeding? That's what we do!

Hi, Van Morrison has a wonderful album called "Hard Nose the Highway." Van Morrison and CHES are connected. Trust me. On the album, there is a track called "Autumn Song". The lyrics include "And in a week or two will be Halloween." For this reason, we only listen to the album in the month of October. At first blush, this seems stringent and silly. But then, I started thinking about how much I love listening to the album while the leaves are falling, wearing a cozy sweater, and sitting by my woodstove. And then I realized. It's not just an album, it's an experience. My friends, here is where Van Morrison connects to CHES. CHES is not just offering educational events. We are offering unique experiences. To connect, to share, to learn, to be seen, heard, and supported. So the next time you hear a Van Morrison song, or you are sitting watching the leaves fall, think of CHES and let the memories of experiences with us sink in.  In addition to being sappy about Van Morrison, I wanted to get sappy about some truly stellar volunteers. At InhibitCon West, we had not one, not two, but THREE rockstar young adults who helped the CHES team in a multitude of ways.  Anoushka Dev, Audriyana Jaber, and Lavang Vu all attended the event and pitched in with everything from welcoming community to the event to chaperoning our childcare field trip to the zoo and our urban Scavenger Hunt with teens (hosted in partnership with the incomparable GutMonkey.) Each of these young adults is a gem and I wanted to publicly acknowledge their dedication and overall talents. If the stars align, you will continue to see them helping at CHES events experiences for years to come! Lastly, OneDrop is rapidly approaching! Acceptances have been sent out! I hope to see many of you there! Be kind to each other, Heather One Drop - Ultra Rare Bleeding Disorder Consortium  CHES is the only national non-profit in the bleeding disorder space whose mission continuously offers meaningful, instructive and engaging education for the ultra-rare community. One Drop is CHES's ultra-rare conference. The event takes place in Tampa, Florida, November 14-16, 2025. This year we are offering extended programming specific to the FXd community. Check out more about CHES's unique OneDrop program here! Advertisement CHES News The CHES staff is close to finalizing dates and locations for 2026. Stay tuned here, and on our social media channels (Facebook, Instagram), and LinkedIn for updates on 2026 opportunities. As always, CHES is grateful to our funders and community for the support! Please continue to spread the word about CHES. We welcome new individuals and families and remain true to our 3 pillars; women, ultra-rares and the inhibitor community. Nonprofit News CHES became aware this week that GoFundMe has created 1.4 MILLION fundraising pages for US based nonprofit organizations without their consent or knowledge. CHES was able to remove our page after considerable effort. I am sharing in case your chapter or another beloved nonprofit you know is impacted. Nonprofits everywhere welcome any donations made directly to them- please avoid using any third party fundraising apps and especially avoid GoFundMe! Any questions, reach out- hcase@ches.education.  Gene Therapy and Hemophilia  A progress update on the future of gene therapy https://www.bioworld.com/articles/725044-gene-therapy-for-hemophilia-stalls-but-doesnt-stop-at-esgct?v=preview Platelet Disorders Although the full article is not yet released, this teaser about Acquired Platelet Disorders is still worth tracking https://www.frontiersin.org/journals/medicine/articles/10.3389/fmed.2025.1638994/abstract Bits and Bobs New leadership coming at ASH https://www.pennmedicine.org/news/penn-hematologist-elected-to-lead-american-society-of-hematology The importance of a hemophilia registery https://www.hematologyadvisor.com/news/hemophilia-patients-sustainable-worldwide-registry-improved-outcomes-risk/ FDA Guidelines for microneedling https://www.news-medical.net/news/20251016/FDA-shares-safety-guidance-for-people-considering-microneedling.aspx Growth in the platelets market https://www.whatech.com/og/markets-research/industrial/994220-increasing-prevalence-of-blood-disorders-fueling-the-growth-of-the-market-due-to-rising-aging-population-and-bone-marrow-decline-major-driver-fuelling-blood-plateletsmarket-growth-and-transformation-in-2025.html George King Bio Medical is acquired  https://www.theglobeandmail.com/investing/markets/markets-news/Newswire.ca/35494800/precision-biologic-acquires-george-king-bio-medical/   Visite la página de Hermanas de Sangre para obtener más información sobre nuestra iniciativa para promover la autodefensa de aquellos que hablan español Hermanas de Sangre Campaign — CHES Foundation | Rare Bleeding Disorders Upcoming CHES Events 2025 OneDrop (Ultra-Rare Consortium): November 14-16, Tampa, FL Applications for 2025 CHES Events open approximately 8 weeks ahead of event date. If you are interested in learning more about CHES's critical in person community educational events in 2025, please visit the CHES Website. We are excited to share education, connections, and community with you!  Check out our Library of resources for women with bleeding disorders!   Supported by an educational grant from Takeda Pharmaceuticals America, Inc Did you know CHES is now a 501(c)3? Since 2015, nSpiration Foundation has collaborated with CHES to further its mission to serve those with bleeding disorders and other chronic conditions. Effective 01/01/2023 nSpiration and CHES have merged to remain a non-profit committed to serving the needs of the community. Want to aid CHES Foundation in future endeavors? Support CHES Foundation to maintain its critical programs by donating. With your help, we can:   Sustain and grow our unique events Continue educational programs and informative communications Tailor resources specifically for the bleeding disorders community Consider making a monthly re-occuring contribution, even $5 would make a huge difference!  Click the button below and give today. Click Here to Donate Older PostBleeding Disorder News # 109: Factor 10 Day! InhibitCon West was WILD! One Drop in November! Recent Back to News Back to Top Clinical Trials Find clinical trials in your area. CHES is not responsible for claims, info, or advice given on this site. Notifications Sign up for your favorite events. Receive periodic info on programs including dates, locations, and open registration. Or update your preferences if you've already signed up for notifications. CHES Foundation, Inc. nSpiration Through Education 84 Beach Street, Middleboro MA 02346 Ph: 781.878.8561