Bleeding Disorder News # 109: Factor 10 Day! InhibitCon West was WILD! One Drop in November!

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Bleeding? That's what we do!

Hi, The CHES team is just back from InhibitCon in Portland, Oregon! We hosted inhibitor patients and their families from all over the country and had a Leverage pre-con the day before with one of our favorite partners, Gut Monkey. The weekend offered engaging education on a variety of hot button topics for the inhibitor community, deep connections, and some truly epic 90s costumes. Thank you to our Legacy Platinum sponsor Hemabio, Platinum Sponsor Novo Nordisk, and Diamond sponsor Sanofi, for their tremendous support of Inhibitcon! In addition to celebrating the success of InhibitonCon, we are also celebrating FACTOR X today! Yes, 10/10 is Factor X day!  A diagnosis of Factor X deficiency is one in one million. If you or someone you know has Factor X, please let them know about CHES's post con event at One Drop where we will be hosting additional programming specific to the FXd community.   One of the most heartwarming aspects of attending any CHES events is watching the relationships grow. At InhibitCon, I witnessed young adults mentoring younger affected youth, new moms getting true and solid advice from older moms, and many occasions of families supporting each other through difficult conversations and challenging times. The stories of the little kids showing each other their ports and giving high fives is EXACTLY why we show up and continue to provide safe spaces for learning and connection. Thank you for the support and engagement at events and throughout the year! Be kind to each other, Heather One Drop - Ultra Rare Bleeding Disorder Consortium  CHES is the only national non-profit in the bleeding disorder space whose mission continuously offers meaningful, instructive and engaging education for the ultra-rare community. One Drop is CHES's ultra-rare conference. The event takes place in Tampa, Florida, November 14-16, 2025. This year we are offering extended programming specific to the FXd community. Applications are open now for this very popular event! Apply today! Factor X  Today is Factor X day! Learn more about Factor X here:  https://medlineplus.gov/ency/article/000553.htm  Heavy Menstrual Bleeding 101 FDA approval requested for Mim8 https://hemophilianewstoday.com/news/novo-nordisk-asks-fda-approve-hem-a-injection-therapy-mim8/?utm_source=HEM&utm_campaign=66ebc4f083-Email_ENL_US_HEM&utm_medium=email&utm_term=0_ab10fdd11a-66ebc4f083-72012681 Dental Care This article explores dental care and bleeding disorders. https://www.nature.com/articles/s41415-025-8815-z Bits and Bobs The importance of conneccting with your PT during the HTC visits. https://hemophilianewstoday.com/columns/knee-care-needed-care-hemophilia-treatment/ Perioperative studies on bleeding disorder patients https://www.sciencedirect.com/science/article/abs/pii/S0007091225005574 Preventable risk factors and newborns https://www.curtin.edu.au/news/media-release/research-reveals-many-newborn-baby-deaths-linked-to-preventable-or-treatable-factors/ CHES News If you are enjoying the Digital Digest and are interested in seeing more articles written by CHES Subject Matter Experts, sign up for our annual print publication LifeLines for Health. It will arrive via snail mail once a year and is packed with knowledge nuggets and community info. Sign up here: https://ches.education/newsletter By Females for Females- BFF- October 22nd at 8:00 PM EST Join CHES's fall virtual By Females for Females (BFF) session! This discussion is open to females ages 19+ who are diagnosed with a bleeding disorder of any kind or seeking diagnosis. It is a safe, inclusive and engaging place to share concerns, questions, and experiences.   This month’s topic is "Exploration and Preparation". The aim is to take space and make space regarding preparation for clinical visits, exploration of what a diagnosis means to you, and how we can best support each other in this bleeding disorder journey. We will be joined by Dr. Joanna Davis, esteemed hematologist and CHES Board Member, who will share what testing women might suggest or advocate for to obtain an accurate diagnosis. Sign up for BFF here: https://form.jotform.com/250796493352163   Visite la página de Hermanas de Sangre para obtener más información sobre nuestra iniciativa para promover la autodefensa de aquellos que hablan español Hermanas de Sangre Campaign — CHES Foundation | Rare Bleeding Disorders Upcoming CHES Events 2025 OneDrop (Ultra-Rare Consortium): November 14-16, Tampa, FL- Applications are open!  Applications for 2025 CHES Events open approximately 8 weeks ahead of event date. If you are interested in learning more about CHES's critical in person community educational events in 2025, please visit the CHES Website. We are excited to share education, connections, and community with you!  Check out our Library of resources for women with bleeding disorders!   Supported by an educational grant from Takeda Pharmaceuticals America, Inc Did you know CHES is now a 501(c)3? Since 2015, nSpiration Foundation has collaborated with CHES to further its mission to serve those with bleeding disorders and other chronic conditions. Effective 01/01/2023 nSpiration and CHES have merged to remain a non-profit committed to serving the needs of the community. Want to aid CHES Foundation in future endeavors? Support CHES Foundation to maintain its critical programs by donating. With your help, we can:   Sustain and grow our unique events Continue educational programs and informative communications Tailor resources specifically for the bleeding disorders community Consider making a monthly re-occuring contribution, even $5 would make a huge difference!  Click the button below and give today. Click Here to Donate Newer PostBleeding Disorder News # 110: 2026 CHES Events are coming! GFM Fraud and Gene Therapy Update Older PostBleeding Disorder News # 108: Ultra-Rare Consortium is Open, New mRNA for Menstrual Bleeding and BD Essential Medications from WFH Recent Back to News Back to Top Clinical Trials Find clinical trials in your area. CHES is not responsible for claims, info, or advice given on this site. Notifications Sign up for your favorite events. Receive periodic info on programs including dates, locations, and open registration. Or update your preferences if you've already signed up for notifications. CHES Foundation, Inc. nSpiration Through Education 84 Beach Street, Middleboro MA 02346 Ph: 781.878.8561