NEW: WFH Shared Decision Making Tool - Released for Access

The Importance of Shared Decision-Making and the WFH SDM Tool

Giving Choice a Voice: Commentary on Development of the World Federation of Hemophilia Shared Decision‐Making Tool - Valentino - Haemophilia - Wiley Online Library

Shared Decision-Making (SDM) is a crucial process that empowers both patients and healthcare providers to collaboratively choose the best course of treatment. This approach combines clinical evidence with patient preferences, values, and priorities, ensuring that treatment decisions are not only medically sound but also aligned with what matters most to the patient. For patients, SDM helps alleviate the uncertainty often associated with complex medical decisions, ensuring they feel informed, supported, and confident in their choices.

The WFH SDM Tool plays a pivotal role in facilitating SDM for people with hemophilia (PWH), their caregivers, and healthcare teams. This interactive, evidence-based decision-support system is designed to guide PWH through a structured process of considering treatment options. By providing a framework for evaluating treatment goals, expected outcomes, and preferences, the tool empowers PWH to make informed choices tailored to their unique needs and circumstances.

This tool not only helps PWH understand the risks and benefits of different treatment classes but also offers balanced, up-to-date educational content to clarify complex options. It ensures that individuals are not left to navigate the often overwhelming landscape of hemophilia treatments alone. Furthermore, the WFH SDM Tool is continuously evolving—being updated twice annually with the latest clinical evidence. This ensures that the tool remains current and reliable, offering the most up-to-date insights on treatment efficacy and safety.

Currently available in English, Spanish, French, and Japanese, with plans to expand into more languages, the WFH SDM Tool is a dynamic resource that supports inclusive and informed decision-making for PWH globally. Its commitment to regularly updating clinical evidence guarantees that patients and their healthcare providers have access to the latest, most relevant information when making decisions that will impact their health and quality of life.