From Heather Case, Director of Advocacy and Outreach
Did you know that many nonprofit organizations fundraise 50% of their operating expenses in the last 48 hours of each calendar year?
As a small and mighty nonprofit in the bleeding disorder space, CHES is the only one with dedicated educational events for the inhibitor and ultra rare communities. We are asking for your support to help fund CHES’s unique and critical educational events in 2025! Help us to bring more families and awareness to the niche corners of the bleeding disorder community.
Education and connection are the benchmarks of CHES- please help us stand in the space to represent these underserved communities. A donation of any amount makes a difference! Thank you!
https://ches.education/donation-page
Best,
Heather Case
Director of Advocacy and Outreach
Bleeding Disorders and Females
https://www.hematologyadvisor.com/news/hemophilia-significant-number-female-carriers-notable-bleeding-tendencies/
https://www.msn.com/en-us/health/other/how-stimulating-a-nerve-could-stop-uncontrolled-bleeding-in-postpartum-women/ar-AA1uG8Mi
https://www.scarymommy.com/parenting/is-it-normal-to-be-irregular-after-your-first-period
https://www.news-medical.net/news/20241122/Gene-variant-linked-to-early-miscarriages-identified.aspx
Nutrition and Bleeding Disorders
https://www.bannerhealth.com/healthcareblog/better-me/nutrition-tips-for-managing-pediatric-blood-disorders
How to read results
https://www.nursingtimes.net/assessment-skills/how-to-interpret-haematology-results-to-inform-diagnosis-and-management-18-11-2024/
Study updates
https://www.rpthjournal.org/article/S2475-0379(22)01170-0/fulltext
https://hemophilianewstoday.com/news/hympavzi-wins-approval-eu-hemophilia-a-b-without-inhibitors/
https://www.hmpgloballearningnetwork.com/site/frmc/news/emicizumab-potential-treatment-pathway-select-hemophilia-b-cases
Recognition of CHES Nurses
All of CHES's events in 2024 have included a combination of three very special nurses; Kathy Byrne, Brianna O'Neil, and Hope Woodcock Ross. As anyone familiar with bleeding disorders can tell you, sometimes you need a solid friend/mentor/mama bear to help you with an infusion. Brianna, Hope and Kathy have served as the guiding lights in self-infusion clinics with CHES for years. We cannot sing their praises enough! Thank you, Kathy, Hope, and Brianna, for sharing your time, expertise and warm hugs with the CHES Community!
2025 Events
If you are interested in learning more about CHES's critical in person community educational events in 2025, please visit the CHES website. Planning for our 2025 events is well underway and we are excited to share education, connections and community with you!
Hermanas de Sangre Video Premiere: December 9th
Join CHES for the Hermanas de Sangre video premiere! The video features 8 Spanish speaking women affected by bleeding disorders and is a mix of patients, caregivers, moms, and advocates, all with a different diagnosis. The purpose is to create support, education and connection to the Hermanas de Sangre community.
For more information about Hermanas de Sangre and to get involved, visit Hermanas de Sangre Campaign — Comprehensive Health Education. This project is made possible with the support of a Sanofi Health Accelerator Award.
¡Únete a CHES para el estreno del vídeo Hermanas de Sangre! El video presenta a 8 mujeres de habla hispana afectadas por trastornos hemorrágicos y es una combinación de pacientes, cuidadoras, madres y abogadas, todas con un diagnóstico diferente. El propósito es crear apoyo, educación y conexión con la comunidad de Hermanas de Sangre. No estamos solas.
Para obtener más información sobre Hermanas de Sangre y participar, visita la Campaña Hermanas de Sangre - Educación Sanitaria Integral . Este proyecto es posible gracias al apoyo de Sanofi Health Accelerator Award.
Check out our Library of resources for women with bleeding disorders!
