Lifelines for Health Digital Digest is an opportunity to share the latest updates for the bleeding disorder community. The articles selected align with CHES's mission: We inspire self-awareness and self-reliance in individuals with chronic health conditions, their families, and their communities. We empower them to engage with their treatment, to live life to its fullest, and, in turn, to inspire others.
We hope you use this newsletter to share critical links, increase awareness about all bleeding disorders, and increase education.
Thank you for being a part of the CHES community!
Have a safe and fun end of summer!
Heather Case, Director of Advocacy and Outreach and the whole CHES team
This weeks key stories:
Women
Providing women with the resources they need for the healthcare they deserve is central to CHES's mission. We aim to build each other up in the journey to diagnosis and access to appropriate care!
https://hemophilianewstoday.com/columns/fighting-heard-journey-bleeding-disorders
Escapism with an excellent cause
Have you ever wondered what it would be like to live and work in the Netherlands? Applications end shortly- now is your chance!
https://www.iamexpat.nl/career/jobs-netherlands/maastricht/research-academic/phd-candidate-national-study-bleeding-disorders
VWD
This article has interesting insights about the most common and seemingly least discussed bleeding disorder.
https://www.hematologyadvisor.com/news/von-willebrand-vwf-fviii-concentrate-shows-high-recovery-rate/
Gene Therapy Updates
These articles share key updates about gene therapy.
https://www.hematologyadvisor.com/news/hemophilia-gene-therapy-shows-long-term-efficacy-treatment-risk/
https://www.cgtlive.com/view/biomarin-limits-geographic-scope-plans-hemophilia-gene-therapy
Other: COVID therapy, iron deficiency, aPTT advancements
A random assortment of news you can use!
https://medicalxpress.com/news/2024-08-exploring-potential-natural-anticoagulants-covid.html#google_vignette
https://www.sciencedaily.com/releases/2024/08/240815124226.htm
https://www.whatech.com/og/markets-research/industrial/865383-understanding-the-future-of-the-activated-partial-thromboplastin-market-innovations-investigated-by-key-trends-strategic-insights-and-leading-innovations-through-2031.amp.html
Check out our Library of resources for women with bleeding disorders!
