Feature:
New LifeLines for Health article from CHES Foundation on your quality of life
The bleeding disorder community has seen a lot of change already in 2024. We humans don’t like change because it presents us with uncertainty. Dr. Gary McClain shares some tips to embracing it
Sobi to present new data at EAHAD 2024
Sobi
Sobi® will present new data at the 17th European Association of Haemophilia and Allied Disorders (EAHAD) conference in Frankfurt from 6-9 February ...
Monthslong shortage forecast for Rebinyn 3000 IU for hemophilia B
Hemophilia News Today
Unexpected demand for the 3000 IU vials of Novo Nordisk's Rebinyn has led to a forecasted monthslong shortage of the hemophilia B therapy.
Novo Nordisk Experiencing Shortage of Rebinyn 3000 IU Vials - National Hemophilia Foundation
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Helping my son stand when hemophilia knocks him off balance
Hemophilia News Today
We always search for ways to stand upright and live our lives, but sometimes the ravages of past bleeding-disorder difficulties offer no place of rest ...
TikTok trend is helping Americans who are trying to buy less this year - Scripps News
Scripps News
For Maya Young, who lives just outside of Boston, managing her family's budget is often one of the most difficult goals to stick with. "Everything ...
A new initiative seeks to preserve the painful history of hemophilia
Hemophilia News Today
Columnist Jennifer Lynne highlights a project intended to preserve a record of the hemophilia holocaust, a pivotal chapter in medical history.
How to Be Aware of Hemophilia? - iCliniq - iCliniq
Christmas Disease (Hemophilia B): An Extensive Overview of Its Genetics, Symptoms ... - DoveMed
What Are The Types Of Hemophilia? - YouTube - YouTube
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EFSTH Integrates App in Haemophilia Treatment - - Voice Gambia Newspaper
Voice Gambia Newspaper
Called the Seytu Haemophilia, the application seeks to help treat patients with the disease. The Head of Surgical Department at the EFSTH, Dr ...
Video: Exploring Treatment Options in Hemophilia - CSL
CSL
Caregiver Impact: von Willebrand Disease. Study examines the effect on quality of life for parents of children who have the rare bleeding disorder. 18 ...
New home for Bleeding Disorders Centre at Singleton Hospital
Swansea Bay University Health Board - NHS Wales
Haemophilia is an inherited blood disorder where one of the clotting factor proteins is missing, causing people to take longer than normal to stop ...
CSL CEO: Let's Shine a Light on Rare Diseases
CSL
Rare Disease Day on February 29 offers a chance to show solidarity with the estimated 300 million people living with rare diseases, ..
Milwaukee to host contest to determine the area's best Bloody Mary - CBS 58
CBS 58
... bleeding disorders community in Wisconsin. The Milwaukee's Best Bloody contest will bring in bartenders from across the city to showcase their ...
Pain due to joint disease common with moderate hemophilia
Hemophilia News Today
Joint disease affects people with moderate hemophilia, causing pain and restricting mobility, a study in Nordic country patients reports.
Hemophilia A Treatment Factors and Outcomes - American Journal of Managed Care - American Journal of Managed Care
Retrospective analysis of clinical data from 171 low-income patients with hemophilia in ... - ResearchGate
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A reminder that some mobility-aid users have invisible disabilities - Hemophilia News Today
Hemophilia News Today
Columnist Cazandra Campos-MacDonald is hurt by the judgment directed toward her son, who occasionally uses a mobility aid due to hemophilia.
Women's Health Wednesday: Underdiagnosed blood disorder - NEWS10 ABC
NEWS10 ABC
In this week's Women's Health Wednesday, we're talking about a bleeding disorder that is underdiagnosed in women. It's called von Willebrand ...
Acts of love are my family's foundation in life with hemophilia
Hemophilia News Today
Despite the challenges of his sons' bleeding disorders, columnist Joe MacDonald ensures that acts of love are a top priority for his family.
HMB 001: A Novel Prophylactic Treatment Offers Hope for Bleeding Disorders
BNN Breaking
Engineered to selectively enhance coagulation, this novel therapy could revolutionize the lives of those affected, offering a brighter, bleed-free ...
A bispecific antibody approach for the potential prophylactic treatment of inherited bleeding disorders - Nature
Infected blood campaigners "confused" by Sir Jonathan appointment - NationalWorld
NationalWorld
Since April 2019 he has been chairman of Oxford University Hospitals NHS Foundation Trust, where people treated at the Oxford Haemophilia Centre were ...
Preventive Jivi found to safely reduce bleeds in hemophilia A: Study
Hemophilia News Today
... haemophilia A: Results of an interventional, post-marketing study,” was published in the journal Haemophilia. Recommended Reading. bone mineral ...
CSL and uniQure unveil three-year data for one-time hemophilia B gene therapy that costs $3.5M
Endpoints News
With its $3.5 million price tag, CSL Behring and uniQure's one-off hemophilia B gene therapy Hemgenix is one of the world's most expensive ...
CHOC administers landmark gene therapy infusion for hemophilia - CHOC Pediatrica - CHOC Pediatrica
Medical Report: Severe Hemophilia A: How Gene Therapy can help Manage a Rare Blood Disease - YouTube
Treating Severe Hemophilia A: How Gene Therapy Can Help Manage a Rare Blood Disorder - YouTube
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Navigating the financial challenges of bleeding disorders - Hemophilia News Today
Hemophilia News Today
Columnist Jennifer Lynne points to five active programs or organizations that offer financial assistance for people with bleeding disorders.
Risk of severe hemorrhage after childbirth 'alarmingly high': Study - Hemophilia News Today
Hemophilia News Today
A large study found postpartum hemorrhage two times more likely in women with bleeding disorders, and severe hemorrhage 5 times more likely.
