Happy Bleeding Disorders Awareness Month! This month we are especially mindful about raising awareness and calling attention to the various bleeding disorders within our community and advocating for equal treatment and access to care for all. I strongly encourage you to check out the events happening in your local community and to consider using your voice as a patient, caregiver, friend, and ally to support the causes and priorities that are near and dear to the bleeding disorder community.

This edition's Digital Digest video is Dr. Sidonio's presentation on Shemophilia. CHES has worked for decades to raise awareness, educate, and connect females affected by bleeding disorders, many of whom have gone under/unrecognized. To watch, click this link. You can gain access to all of CHES's recorded webinars at the footer of the CHES website.
Best,

Heather Case
Director of Advocacy and Outreach

After the Shock Family Inhibitor Camp - Applications are Open!
CHES is the only national non-profit in the bleeding disorder space whose mission continuously offers meaningful, instructive and engaging education for the inhibitor community.

By Females for Females BFFF
By Females for Females, BFFF, calls are open to any female or those who identify as a female who are 19 years+. We welcome the experience, knowledge and shared space that this group is fostering from females of all ages! To learn more and register for future events, contact Heather Case at hcase@ches.education or use this link.

Bleeding Disorder Awareness Month
This article explores one family's journey to diagnosis.
https://www.texaschildrens.org/content/patient-stories/march-bleeding-disorders-awareness-month-one-mothers-journey-texas

This article discusses the stories of several members of the bleeding disorders community.
https://hemophilianewstoday.com/columns/celebrating-stories-bleeding-disorders-community/

Women and Bleeding Disorders
Take a look at what gender bias in healthcare can look like and how it impacts women with bleeding disorders.
https://www.medicalnewstoday.com/articles/womens-health-self-advocacy

Possible causes of bleeding in women
https://www.msn.com/en-in/health/health-news/vicarious-menstruation-may-be-why-you-are-bleeding-from-your-nose-and-eyes/ar-AA1BrWOT

Post partum hemorrhages and HMB in women with Glanzmann's Thrombasthenia
https://onlinelibrary.wiley.com/doi/10.1111/hae.70030?af=R

This article explores the connection between HMB and VWD.
https://nypost.com/2025/03/27/health/your-heavy-period-could-be-a-sign-of-this-blood-disorder/

World Hemophilia Day
World Hemophilia Day is celebrated around the world on April 17th. The World Federation of Hemophilia's theme for this year focuses on Women and Girls with Bleeding Disorders. There is lots of content and good information on their site about the upcoming celebrations and awareness raising. Check it out!
https://wfh.org/world-hemophilia-day/

Pediatric news
This is a case report on a pediatric fracture.
https://www.hematologyadvisor.com/news/hemophilia-case-report-femur-supracondylar-fracture-child-treatment-risk/

Platelets
This research explores cold storage platelets.
https://www.researchgate.net/publication/389716931_Cold_Stored_Platelets_A_Solution_for_Platelet_Aggregation_External_Quality_AssessmentProficiency_Testing

CHES Events 2025 SAVE THE DATE!

InhibitCon East: April 4-6, Charlotte, NC

After the Shock (Family Inhibitor Camp): June 20-23, Lakewood, PA

LadyBugs: August 8-10, Salt Lake City, UT

InhibitCon West: October 3-5, Portland, OR

OneDrop (Ultra-Rare Consortium): November 14-16, Tampa, FL

Applications for 2025 CHES Events open approximately 8 weeks ahead of event date. If you are interested in learning more about CHES's critical in person community educational events in 2025, please visit the CHES Website. Planning for our 2025 events is well underway and we are excited to share education, connections and community with you!