Hi friends,

Thank you to Christopher for stepping in while I was traveling for work (LadyBugs and NBDF's BDC) and fun (college tours, gulp.)

As Christopher mentioned, we had a tremendous LadyBugs event! Thank you to the industry partners who stepped up to build a bridge between talking about the importance of supporting women with bleeding disorders and actually taking action. I am hopeful we will get even more support in the coming months to continue to draw attention to the need for women to be SEEN, HEARD, and SUPPORTED!

Up next for us is our InhibitCon West taking place in Portland, Oregon in October. Applications are open! See link below!

A heartfelt thank you to everyone who stopped by the CHES exhibit booth at BDC or attended inhibitor sessions led by or attended by us. Whether you are a new friend or a friend with more patina, we truly appreciate the support and community. Please continue to encourage your friends and family to seek out CHES. CHES will always stand by our 3 pillars; Inhibitors, Ultra-Rares and Women!

Best,
Heather

CHES Foundation was honored to be included in Patient Advocacy Voices. The podcast features CHES CEO Janet Brewer sitting down with Sanofi's host Eric Racine and co-host Jane Smith to address the underserved patients and caregivers in the bleeding disorder community

InhibitCon West
CHES is the only national non-profit in the bleeding disorder space whose mission continuously offers meaningful, instructive and engaging education for the inhibitor community.

We are excited for our 2nd InhibitCon of 2025! InhibitCon West will take place in Portland, Oregon on October 3-5, 2025. We also be hosting a pre-event Leverage program with GutMonkey on Thursday, October 2nd. Leverage is open to adults 18+ with an inhibitor. Applications are live on the InhibitCon homepage, sign-up NOW!

CHES featured on BloodStream podcast
Listen to board members Dr. Joanna Davis and Barb Forss, and community member Jeffrey Moualim, talk about CHES and the importance of keeping a continued focus on women and bleeding
https://www.bloodstreammedia.com/bloodstream-episodes/actress-sami-rappoports-short-film-viii-plus-jeff-amp-barb-with-dr-joanna-davis

Broadcast Night! Sept. 9, 2025 @ 7:30pm EST: Expert presents A New Subcutaneous Treatment Option
This new rebalancing therapy offers a subcutaneous treatment for people living with Hemophilia A or B....Join an interactive educational presentation where a healthcare practitioner will share information on the benefits, safety and how to get started on this treatment.
https://ches.education/sanofi-qfitlia-webinar-9-9-25

Women
This article from an attendee at LadyBugs explains why it's critical that CHES continues to support women!
https://hemophilianewstoday.com/columns/demand-connection-women-bleeding-disorders/

Heavy Menstrual Bleeding in women over 40
https://www.onlymyhealth.com/top-medical-reasons-behind-heavy-periods-with-clots-in-women-over-40-12977836977

vWD
Managing anesthesia and a vWD diagnosis
https://www.cureus.com/articles/394186-managing-anesthesia-for-a-patient-with-von-willebrand-disease-a-case-report#!/

Glanzmann's thrombasthenia
Two articles of importance!
https://www.researchgate.net/publication/393139708_Clinical_history_and_management_of_Glanzmann_Thrombasthenia_A_retrospective_chart_review?channel=doi&linkId=68613c4a07b3253fd1ca70ae&showFulltext=true

https://www.researchgate.net/publication/393140258_Impact_of_Iron_Deficiency_Anaemia_Heavy_Menstrual_Bleeding_in_Glanzmann_Thrombasthenia?channel=doi&linkId=68613cd7e9b6c13c89e51b6c&showFulltext=true

Mental Health
Mental Health in Teens
https://www.medpagetoday.com/opinion/second-opinions/116992?xid=nl_mpt_DHE_2025-08-14&mh=095e2537ba377a1abb534741097ddeed&zdee=gAAAAABm4uvM-9TQHiTcqqqA_hmxWc9HmSpgfDznDXKe3_a7WJMzviDRMCLiRF-HTZg_c-Pdr4A4OwEVVt03Ts-T6dff1_mtT_loyZiHGGmJ-9617rIPb5s%3D&utm_source=Sailthru&utm_medium=email&utm_campaign=Daily%20Headlines%20Evening%20-%20Randomized%202025-08-14&utm_term=NL_Daily_DHE_dual-gmail-definition

Mental Health First Aid is a national "evidence based, early intervention course that teaches participants about mental health and substance abuse challenges." I cannot recommend it highly enough- the website it easy to navigate and there are frequent virtual trainings in English and Spanish! Substance use and mental health challenges are rampant in the community- educate yourself to help a friend or family member!
https://www.mentalhealthfirstaid.org/

Bits and Bobs
Joint disease and children with hemophilia
https://www.cochrane.org/evidence/CD003429_does-regular-clotting-factor-therapy-prevent-joint-disease-children-severe-hemophilia-or-b

Risks and benefits to hip replacement surgery
https://hemophilianewstoday.com/news/hip-replacement-benefit-hemophilia-patients-risks-exist/

PBM Legislation in Arkansas
https://www.medpagetoday.com/opinion/second-opinions/117028?xid=nl_mpt_DHE_2025-08-17&mh=095e2537ba377a1abb534741097ddeed&zdee=gAAAAABm4uvM-9TQHiTcqqqA_hmxWc9HmSpgfDznDXKe3_a7WJMzviDRMCLiRF-HTZg_c-Pdr4A4OwEVVt03Ts-T6dff1_mtT_loyZiHGGmJ-9617rIPb5s%3D&utm_source=Sailthru&utm_medium=email&utm_campaign=Daily%20Headlines%20Evening%20-%20Randomized%202025-08-17&utm_term=NL_Daily_DHE_dual-gmail-definition

Obesity is not just a problem in the US, but a problem for the BD community with the impact of extra weight on joints. This can be especially true for individuals aging with BD with risk factors such as pre-diabetes, diabetes and heart disease.
https://www.medpagetoday.com/endocrinology/diabetes/117003?xid=nl_mpt_DHE_2025-08-16&mh=095e2537ba377a1abb534741097ddeed&zdee=gAAAAABm4uvM-9TQHiTcqqqA_hmxWc9HmSpgfDznDXKe3_a7WJMzviDRMCLiRF-HTZg_c-Pdr4A4OwEVVt03Ts-T6dff1_mtT_loyZiHGGmJ-9617rIPb5s%3D&utm_source=Sailthru&utm_medium=email&utm_campaign=Weekly%20Review%202025-08-16&utm_term=NL_DHE_Weekly_Active

By Females for Females BFFF
By Females for Females, BFFF, calls are open to any female or those who identify as a female who are 19 years+. We welcome the experience, knowledge and shared space that this group is fostering from females of all ages! To sign up for BFFF news and events, use this link. Several BFFs attended LadyBugs! We are hoping for a virtual session in late September- stay tuned!

Visite la página de Hermanas de Sangre para obtener más información sobre nuestra iniciativa para promover la autodefensa de aquellos que hablan español

**Hermanas de Sangre Campaign — CHES Foundation | Rare Bleeding Disorders**

Upcoming CHES Events 2025

CHES at NBDC Aug 20-23! We went, we saw, we networked!

LadyBugs: August 8-10, Salt Lake City, UT- IN THE BOOKS!

InhibitCon West: October 3-5, Portland, OR- Applications are currently OPEN!

OneDrop (Ultra-Rare Consortium): November 14-16, Tampa, FL

Applications for 2025 CHES Events open approximately 8 weeks ahead of event date. If you are interested in learning more about CHES's critical in person community educational events in 2025, please visit the CHES Website. We are excited to share education, connections, and community with you!