Hi,
School is back in session! The CHES team is working hard on our final two events of 2025 plus sketching out our plans for 2026! Each of us is trying to be a good octopus - spinning multiple plates as we seek to be good stewards of our funding and champions for those with an inhibitor, ultra-rares, and women in the community.

CHES has had a very successful and busy 2025, in large part due to YOU! Your ongoing dedication to the underserved communities of inhibitors, ultra-rares and women has not gone unnoticed. With your support, we were able to provide support, education and connection at multiple in person events. We are grateful for your commitment to the CHES vision.

Giving Tuesday is still a few weeks away but as a lean and mean staff team, we fundraise year-round. ALL CHES events are of NO COST to individuals and families. Any amount helps us to offset expenses and keep us true to our value of not allowing finances be a barrier to participation in CHES events. Please consider a donation to enhance CHES efforts in 2026.

Best,
Heather E. Case, M.Ed.
Director of Advocacy and Outreach

InhibitCon West
CHES is the only national non-profit in the bleeding disorder space whose mission continuously offers meaningful, instructive and engaging education for the inhibitor community.

We are excited for our 2nd InhibitCon of 2025! InhibitCon West will take place in Portland, Oregon on October 3-5, 2025. We also be hosting a pre-event Leverage program with GutMonkey on Thursday, October 2nd. Leverage is open to adults 18+ with an inhibitor. Applications are live on the InhibitCon homepage, sign-up NOW!

Mental Health
There is still so much light that needs to be shined on Mental Health in the community. Here is one little ray. The more we understand, the better we can do.
https://www.managedhealthcareexecutive.com/view/pain-and-joint-problems-drive-higher-depression-anxiety-in-people-with-hemophilia

Heavy Menstrual Bleeding 101
Many readers will recognize these signs and symptoms in yourself and others. However, this is a great article to share with friends and family who have not yet recognized the signs and may need a nudge from a caring individual!
https://www.hackensackmeridianhealth.org/en/healthu/2025/08/28/my-period-is-super-heavy-what-is-going-on

vWD
Clinical indications for VonVendi have expanded!
https://www.takeda.com/newsroom/newsreleases/2025/expanded-indication-vonvendi/

Clinical Trials
A clinical trial for immune thrombocytopenia
https://www.openpr.com/news/4170404/immune-thrombocytopenia-clinical-trials-2025-advancing-tpo-r

A clinical trial for a hemophilia B product
https://www.hematologyadvisor.com/news/hemophilia-first-patient-become9-trial-treatment-risk/

Bits and Bobs
New ITP drug approved
https://seekingalpha.com/news/4490635-sanofi-wins-fda-nod-bleeding-disorder-drug

If you are enjoying the Digital Digest and are interested in seeing more articles written by CHES Subject Matter Experts, sign up for our annual print publication LifeLines for Health. It will arrive via snail mail once a year and is packed with knowledge nuggets and community info. Sign up here: https://ches.education/newsletter

By Females for Females- BFF
Join CHES's fall virtual By Females for Females (BFF) session! This discussion is open to females ages 19+ who are diagnosed with a bleeding disorder of any kind or seeking diagnosis. It is a safe, inclusive and engaging place to share concerns, questions, and experiences.

This month’s topic is "Exploration and Preparation". The aim is to take space and make space regarding preparation for clinical visits, exploration of what a diagnosis means to you, and how we can best support each other in this bleeding disorder journey. We will be joined by Dr. Joanna Davis, esteemed hematologist and CHES Board Member, who will share what testing women might suggest or advocate for to obtain an accurate diagnosis. Register here: https://form.jotform.com/250796493352163

Visite la página de Hermanas de Sangre para obtener más información sobre nuestra iniciativa para promover la autodefensa de aquellos que hablan español

**Hermanas de Sangre Campaign — CHES Foundation | Rare Bleeding Disorders**

Upcoming CHES Events 2025

CHES at NBDC Aug 20-23! We went, we saw, we networked!

LadyBugs: August 8-10, Salt Lake City, UT- IN THE BOOKS!

InhibitCon West: October 3-5, Portland, OR- Applications are currently OPEN! Closes 9-19-2025

OneDrop (Ultra-Rare Consortium): November 14-16, Tampa, FL - Applications Opening Next Week!

Applications for 2025 CHES Events open approximately 8 weeks ahead of event date. If you are interested in learning more about CHES's critical in person community educational events in 2025, please visit the CHES Website. We are excited to share education, connections, and community with you!