Bleeding Disorder News # 118: Champions Assemble! LadyBugs Deadline March 1 and Don't Forget Grandma!

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Bleeding? That's what we do!

In the last edition of the Digital Digest, I wrote about funding which honestly is another word for relationships. Relationships are the currency of the bleeding disorder community. Knowing how to ask for what, who to connect with whom, which sponsor will support which causes, and how to build trust and integrity over time are all fundamental to building a strong network of relationships.  CHES has been building social capital and currency for decades. We stand strong on 3 pillars: women, the inhibitor community and ultra-rares. And we need your help. Travel Fund aka CHES Champions Tax deductible donations can be made to the CHES Champions fund. CHES Champions helps to cover travel costs for our community members who would be unable to attend events without financial assistance.    In 2026, CHES is asking all participants who are financially able to cover the cost of overnight hotel rooms for in person CHES experiences. We know based on years of feedback that people would like to contribute to further CHES’s vision. CHES Champions is set up for donations of any size. With a little love, we can ensure that all of our community members have equitable access  to be seen, heard, and supported.  $50= covers the cost of one breakfast meal for one attendee $150= covers a portion of our educational costs $250= covers the cost of a child at a hotel event for a day (food and childcare activities) $500= covers the cost of lodging for one attendee or one family for an event weekend   The next Hermanas de Sangre webinar, "Sanación y Autocuidado" presentado por Dr. Johayrs Aybar, is happening on Tuesday, March 3rd at 8:00 PM ET on Zoom. Use the link below to sign up for Hermanas de Sangre and receive details on the next session. If you have already signed up for Hermanas de Sangre, there is no need to sign up again. Hermanas de Sangre Campaign — CHES Foundation | Rare Bleeding Disorders SAVE THE DATES! - CHES 2026 IN PERSON EVENTS! CHES is the only national non-profit in the bleeding disorder space whose mission continuously offers meaningful, instructive, and consistent education for women and the ultra-rare and inhibitor communities. We are thrilled to announce our 2026 dates!   Applications open 8-10 weeks prior to the event. Please stay tuned to CHES social media (Facebook and Instagram) and our LinkedIn profile to watch for open dates. Applications will also linked to this regular Digital Digest as they open. One Drop: Tampa, FL- February 27-March 1, 2026 (postponed from November 2025) This event is full.  LadyBugs National Women's Conference: Colonial Williamsburg, VA- April 24-26, 2026 in partnership with the Virginia Bleeding Disorders Foundation (formerly Virginia Hemophilia Foundation)- Applications received March 1st or later will automatically be waitlisted. After the Shock Inhibitor Family Camp: Camp Zeke, June 19-22, 2026 InhibitCon: New Orleans, LA, September 10-13, 2026 *First day is Leverage in partnership with GutMonkey OneDrop 2026: Tampa, FL, November 13-15, 2026 *note new dates   CHES News CHES recently created an online resources page for Health Care Professionals! Check it out here! It's full of incredible, patient facing resources that HCPs can share with patients. https://ches.education/for-mps Dr. Lynn Malec's contributions to the bleeding disorder community. She will be deeply missed. https://www.surfradiofal.co.uk/madison-wisconsin-native-and-beloved-researcher-dr-lynn-malec-passes-away-survived-by-husband-dave-and-two-daughters/ Women Don't forget Grandma! https://hemophilianewstoday.com/columns/genetic-tests-hemophilia-dont-forget-grandma/ VWD updates True VWD progress https://hemophilianewstoday.com/columns/progress-von-willebrand-disease-treatment-finally-feels-real/ Treatment updates Priority review of pediatric use of marstacimab https://www.hematologyadvisor.com/news/marstacimab-sbla-for-pediatric-hemophilia-a-or-b-gets-priority-review/ Updated Shared Decision Making tool from WFH https://sdm.wfh.org/ Ultra-rares Neonatal Glanzmanns thrombasthenia https://www.cureus.com/articles/463329-neonatal-glanzmanns-thrombasthenia-presenting-as-refractory-post-circumcision-hemorrhage-in-a-region-of-high-consanguinity-a-case-report#!/ Bernard Soulier Syndrome https://www.cureus.com/articles/461533-bernard-soulier-syndrome-misdiagnosed-and-treated-as-immune-thrombocytopenia-purpura-a-case-report#!/   Check out our Library of resources for women with bleeding disorders!   Supported by an educational grant from Takeda Pharmaceuticals America, Inc CHES is now a 501(c)3. Since January 2023, nSpiration Foundation and CHES have merged to remain a non-profit committed to serving the needs of the community. Support CHES Foundation to maintain its critical programs by donating. With your help, we can:   Sustain and grow our unique events Continue educational programs and informative communications Tailor resources specifically for the bleeding disorders community Consider making a monthly re-occurring contribution, even $5 would make a huge difference!  Click the button below and give today. Click Here to Donate Older Post🚨 CALL TO ACTION 📢 Impact of Changes at CHES Recent Back to News Back to Top Clinical Trials Find clinical trials in your area. CHES is not responsible for claims, info, or advice given on this site. Notifications Sign up for your favorite events. Receive periodic info on programs including dates, locations, and open registration. Or update your preferences if you've already signed up for notifications. CHES Foundation, Inc. nSpiration Through Education 84 Beach Street, Middleboro MA 02346 Ph: 781.878.8561