BD News # 65: The Hub; Hero In The Community; Lightening The Load

A message from Paul Wheatley:

Happy Friday to the Bleeding Disorder Community, here is our Bleeding Disorder News Issue #65.

A last visit with my son's pediatric team closes a chapter of his life - Hemophilia News Today
Hemophilia News Today
... bleeding disorders. As Caeleb and I waited for Dr. Abraham to enter the room, I looked at a toy in the corner. I reminded my son that we'd played ..

Rebinyn® (Factor IX (Recombinant), GlycoPEGylated) 3000 IU Supply Update.
https://www.novo-pi.com/rebinyn.pdf

Cornwall infected blood scandal victim angry with final inquiry report delay
Cornwall Live
Some 350 people with bleeding disorders infected with HCV, died as a result of their infections. A total of 1,170 people in the UK who were infected ...

How to create a budget for 2024: First, check out how you spent in 2023 - USA Today
USA Today
A great way to make a household budget for 2024, financial planners say, is to look at how you spent money in 2023.

An unlikely walking companion helps me improve my wellness - Hemophilia News Today
Hemophilia News Today
... bleeding disorders. Despite ... Jennifer hopes her column will raise awareness for hemophilia and other bleeding disorders, especially among women.

Mild haemophilia may add an extra year or two to someone's life - New Scientist
New Scientist
People with mild haemophilia, a condition that reduces blood clotting, seem to have a slightly longer life expectancy than those without it.

Octapharma presents at the 17th Annual Congress of the European Association for Haemophilia...
Breaking Latest News
The study shows that Wilate® prophylaxis is highly effective in reducing bleeding rates in children and adults with all types of VWD and at all ...

Thrombocytopenia vs. hemophilia: What to know - Medical News Today
Medical News Today
What are coagulation disorders? Read on to learn more about these ... Read on to learn more about this bleeding disorder, including why it occurs ...

Patient and Provider Groups Applaud HHS Decision to Drop Appeal of Court Ruling
Arthritis Foundation
“That's why this issue has been the top federal and state policy priority for the National Bleeding Disorders ... disease activity. Patients need to be ...

'The Hub' aims for hemophilia B awareness, empowerment
Hemophilia News Today
The Coalition for Hemophilia B unveils an initiative to promote hemophilia B awareness and health literacy, writes columnist Jennifer Lynne.
MEDICAL ADVISORY: Takeda's Voluntary Withdrawal: Alert on Misprinted Labels for VONVENDI - Hemophilia Council of California
Hemophilia Federation America on Instagram - Instagram
Hemophilia - Hello Doctor - Pahina 1 ng 0 - Hello Doctor Philippines
Full Coverage

Is Desmopressin Safe In Women with Inherited Bleeding Disorders During Pregnancy?
Docwire News
Desmopressin was safe and effective for women with inherited bleeding disorders during both pregnancy and delivery.

'Hero of the community' dad given 'death sentence' by 'worst health scandal in history'
The Mirror
... clotting factor. These products meant that for the first time people with bleeding disorders could be treated at home. "This was a great ...

12th Annual Milwaukee's Best Bloody - TMJ4
TMJ4
The GLHF is celebrating 50 years of educating, supporting and advocating for bleeding disorders within the community. The fundraiser has ...

Now, thalassaemia, haemophilia patients in Haryana to get monthly pension of
Hindustan Times
The Cabinet approved the inclusion of thalassaemia and haemophilia in the notification for Haryana Divyang Pension Rules, 2016, ...

Emicizumab Demonstrates Efficacy in Treatment of Hemophilia
American Journal of Managed Care
Patients with hemophilia A experienced prognostic and quality of life benefits from emicizumab (Hemlibra; Genentech) prophylaxis treatment.
Evolution of the Hemophilia A Treatment Landscape: Innovations and Guidelines - American Journal of Managed Care
Plain language summary of efanesoctocog alfa for patients with severe ... - Future Medicine - Future Medicine
Tailored Prophylaxis in Children with Severe Hemophilia: A Four-Year Iranian Study - ResearchGate
Full Coverage

Risk of developing inhibitors varies depending on therapy type: Study
Hemophilia News Today
The development of inhibitors against the clotting factor in replacement therapies for hemophilia may depend on the type of product used, a study ...
Study Suggests Hemophilia Patient Preferences Evolving Along with Treatments - National Hemophilia Foundation
Tom E. Howard, MD, PhD, on a Gene Editing Approach to Treating Hemophilia A - CGTLive™
Acquired Hemophilia Treatment Market: Comprehensive Assessment by Type, Application ... - Medium
Full Coverage

Lightening the load is crucial when parenting a son with hemophilia
Hemophilia News Today
And when I witness my boys struggle because of hemophilia, the burden becomes more than I can bear. I live with heaviness. My youngest son, Caeleb, ...
Hemophilia A - Leapcure - Leapcure
Business Manager - Hemophilia & Thrombosis Treatment Center - LinkedIn - LinkedIn
School Injection Stories - America's First Safe Injection Site in EastHarlem Turns One. School ... - nachlasskanzlei-sommer.de

Mim8 Investigational Therapy for Hemophilia A Moves to Extension Phase
Hematology Advisor
Researchers are seeking to assess the efficacy and safety of Mim8, a factor VIIIa mimetic for use in treating hemophilia A. Researchers have ...

Hemgenix given to 1st patient in Florida at Tampa General Hospital
Hemophilia News Today
Hemophilia is characterized by the lack or dysfunction of certain clotting factors, or blood-clotting proteins, and is marked by excessive and ...

Dealing with loneliness during my husband's bleeding episodes - Hemophilia News Today
Hemophilia News Today
But in my marriage to my husband, Jared, who has severe hemophilia B and a seizure disorder, it's a feeling that often creeps in whenever he's stuck ...