Comprehensive Health Education | Rare Bleeding Disorders

View Original

Bleeding Disorder News # 75: Bronx Brothers, Managing Fear and Renewed Hope

This week's key stories:

Managing fear while raising a child with hemophilia
https://hemophilianewstoday.com/columns/managing-fear-while-raising-child-hemophilia/

EC approves Sobi’s Altuvoct for hemophilia A
https://www.thepharmaletter.com/article/ec-approves-sobi-s-altuvoct-for-hemophilia-a

Study: Mim8 Shows Reductions in Treated Bleeds for Patients With Hemophilia A
https://www.pharmacytimes.com/view/study-mim8-shows-reductions-in-treated-bleeds-for-patients-with-hemophilia-a

I was forced out of Essex' as a boy after becoming victim of blood contamination scandal
https://www.essexlive.news/news/i-forced-out-essex-boy-9342647

Emicizumab Has Strong Safety, Efficacy Record in Real-World Usage
https://www.ajmc.com/view/emicizumab-has-strong-safety-efficacy-record-in-real-world-usage

Haemophilia drug could reduce treated bleeding episodes
https://www.europeanpharmaceuticalreview.com/news/230338/haemophilia-drug-could-reduce-treated-bleeding-episodes/

Octapharma's continuing dedication to improving the lives of people with rare bleeding disorders to be showcased at ISTH 2024
https://www.morningstar.com/news/pr-newswire/20240610ln35443/octapharmas-continuing-dedication-to-improving-the-lives-of-people-with-rare-bleeding-disorders-to-be-showcased-at-isth-2024

In a phone call from my son, I find renewed hope
https://hemophilianewstoday.com/columns/phone-call-from-my-son-i-find-renewed-hope/

CHESS II: Hemophilia Severity Correlates With Economic Burden, Patient QOL
https://www.ajmc.com/view/chess-ii-hemophilia-severity-correlates-with-economic-burden-patient-qol

ROCTAVIAN® (valoctocogene roxaparvovec-rvox) at International Society on Thrombosis and Haemostasis 2024 Congress
https://www.biospace.com/article/releases/biomarin-presents-new-phase-3-four-year-data-underscoring-long-term-safety-and-efficacy-of-roctavian-valoctocogene-roxaparvovec-rvox-at-international-society-on-thrombosis-and-haemostasis-2024-congress/

HKUMed Study: AHA Cases in Locals Double Caucasian Rates
https://www.miragenews.com/hkumed-study-aha-cases-in-locals-double-1251734/

Health secretary apologises to victims of infected blood scandal
https://nation.cymru/news/health-secretary-apologises-to-victims-of-infected-blood-scandal/

Pfizer’s one-time haemophilia B therapy Durveqtix receives CHMP recommendation
https://pmlive.com/pharma_news/pfizers-one-time-haemophilia-b-therapy-durveqtix-receives-chmp-recommendation/

Joint op saves life of haemophilia-hit boy
https://timesofindia.indiatimes.com/city/nagpur/joint-operation-saves-life-of-haemophilia-affected-boy/articleshow/110683297.cms

Roche hemophilia drug wins FDA nod, with a warning
https://www.reuters.com/article/business/healthcare-pharmaceuticals/roche-hemophilia-drug-wins-fda-nod-with-a-warning-idUSL8N1NM614/

Two Bronx brothers raise awareness of rare blood condition
https://bronx.news12.com/two-bronx-brothers-raise-awareness-of-rare-blood-condition

Check out our Library of resources for women with bleeding disorders!